Thalamus atrophy

[Tulip77]

Anyone have this?

I’m having problems at work. My mood can be rather harsh and short tempered. Concentration is not good and I am making mistakes. Mistakes that I normally would not make.

Then I have periods of lightheadedness, followed by a very odd sensation in my head that I don’t even really know how to describe. I feel foggy and just out of it. It’s like the veil of fatigue is laid over me. My brain feels heavy.

I don’t know if I am making sense but I just don’t know how to describe it. Looking for ways to help if anyone is experiencing something similar.

I am guessing that it is related to my thalamus atrophy- who knows.

[RoyceNewton]

I am guessing it is relatedx to your friend and mine. ms, I would suggest talking to your neroligist about it.

[greaterexp]

I’d sure ask your neurologist about this. Is it a relapse? Is it something else? What might be done to help?

I sure hope you can find something that helps with these symptoms.

[Tulip77 in reply to greaterexp]

I’ve been having it off and on for a few months. It started before I got on Copaxone. Many of my other symptoms have subsided. Certain one have not and I think I’m just stuck with them. This however really bothers me!

[greaterexp in reply to Tulip77]

Sometimes it’s the cognitive and mood changes that bother me most. I put my self in “time out” periodically, but that would be tough to do while at work.

[Tulip77 in reply to greaterexp]

I’m very concerned about employment. I’m a single parent and there is no back up plan or hefty savings account to survive on. I don’t have any sort of disability insurance... nothing 😕

[greaterexp in reply to Tulip77]

Do you have family or friends that can help you come up with a working plan? Have you applied for SSDI? You might check with MyMSAA by calling their hotline to see how they might help you. I’m sorry I’m just using my phone which doesn’t reliably let me post links.

[kdali]

I’m not sure. My thalamus is fine. I’ve had the head feeling and no recollection of events or conversations...it’s quite surreal and use to be kinda scary. Mistakes made in my actions, words, attitude. I usually feel the “ black cloud of despair” before it hits, and I have to work fast to prevent myself from becoming something I’m not. I hope this makes sense. I use to hide in the supply room at work with an ice pack on the back of my neck, while taking deep breaths. Now I can take a break when the exhaustion is trying to murder my soul, or sing something silly loudly when I can’t rest, (works for entertaining babies too). Sleep quality makes a huge difference.

Broken record alert: everything is so much easier, calmer, clearer if I stick with keto.

Recently my neuro gained a grandchild and since remembering how challenging it is to care for a baby all day by yourself as a healthy person, she understood my MS issues in a new light and wrote for a stimulant, which is helpful more than 50% of the day 🙌👏🙏 It’s like Cinderella, but I only have until 4pm until my brain turns back into a pumpkin 🤣

[rjoneslaw]

i learned something new 2dat thanks

[IFwczs]

Sorry about your symptoms. My severe brain fog, fatigue, depression and mood swings subsided when I changed my diet. It made a world of difference. Are you following any diet?