My diagnosis, like many, did not come easy. In 2015 I was having heart palpitations and VERY weird things going on with my eyes. Not blinded but numerous times per days that I was unable to see but it would go away within minutes. Went to PCP who sent me to a cardiologist who said I am fine no issues. PCP sends me for an MRI on my brain. Radiologist and PCP agree demyelinating lesions on my brain should be evaluated for MS. Neurologist told my I have cronic migraines. I said no I don't. He said yes you do. I asked, could I have a migraine and not feel it? He said yes. I asked, could I not feel multiple migraines that are so bad they are causing lesions on my brain. He said he didn't think so but obviously it could happen, look at you, and I said good bye, never to speak to him again because someone has to graduate at the bottom of the class and he obviously scrapped by! I suck it up and try to ignore my symptoms. In August of 2017, I was terminated from the state job I had because I broke a policy. I swore numerous times I didn't remember the policy. Sounds reasonable because it was a policy we worked with everyday but I truly forgot it. So I start to evaluate my symptoms. I go to my PCP. She is awesome and works with me weekly running tests eliminate other possible diagnosis. Really low platelet count sent to hematologist which concluded I needed to see a neurologist due to the size of the lesions.
So here was 1 year of my life. Every week I was seeing my doctor and my hematologist and every other with I saw my neuro. I started texfideara. Things did not go well. My next post will finish this long drawn history that will be followed by lots of questions. I want to give everyone the clearest picture as to what, is now happenings and the future may or not hold.