Cognitive Issues are my initial signs fo... - My MSAA Community

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Cognitive Issues are my initial signs for my MS diagnosis

GardnervilleMS profile image
3 Replies

My diagnosis, like many, did not come easy. In 2015 I was having heart palpitations and VERY weird things going on with my eyes. Not blinded but numerous times per days that I was unable to see but it would go away within minutes. Went to PCP who sent me to a cardiologist who said I am fine no issues. PCP sends me for an MRI on my brain. Radiologist and PCP agree demyelinating lesions on my brain should be evaluated for MS. Neurologist told my I have cronic migraines. I said no I don't. He said yes you do. I asked, could I have a migraine and not feel it? He said yes. I asked, could I not feel multiple migraines that are so bad they are causing lesions on my brain. He said he didn't think so but obviously it could happen, look at you, and I said good bye, never to speak to him again because someone has to graduate at the bottom of the class and he obviously scrapped by! I suck it up and try to ignore my symptoms. In August of 2017, I was terminated from the state job I had because I broke a policy. I swore numerous times I didn't remember the policy. Sounds reasonable because it was a policy we worked with everyday but I truly forgot it. So I start to evaluate my symptoms. I go to my PCP. She is awesome and works with me weekly running tests eliminate other possible diagnosis. Really low platelet count sent to hematologist which concluded I needed to see a neurologist due to the size of the lesions.

So here was 1 year of my life. Every week I was seeing my doctor and my hematologist and every other with I saw my neuro. I started texfideara. Things did not go well. My next post will finish this long drawn history that will be followed by lots of questions. I want to give everyone the clearest picture as to what, is now happenings and the future may or not hold.

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GardnervilleMS profile image
GardnervilleMS
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Jesmcd2 profile image
Jesmcd2CommunityAmbassador

😊

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi GardnervilleMS it's funny you mention migraines, as my 1st neuro said that also. 😊 So I can understand how frustrating that can be.

I look forward to to your next post! 💕🤗

J🌠

CalfeeChick profile image
CalfeeChickCommunityAmbassador

GardnervilleMS So sorry you had to go thru all of that.. And it's tough to find the right doc to work with you. My active lesions are in my spine. T2-T5.... over 20+ white spots in brain, not Lesions. No change in size or shape in last 3 yrs. Perhaps you live near a university hospital that you might get in with a really great neuro!

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