working the limits... imposed by my MS - My MSAA Community

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working the limits... imposed by my MS

anaishunter profile image
3 Replies

I'm one of the lucky one in that MS has not really changed my life(yet). So far, it has only imposed new limits on what I can or can't do and what I also need to do. And I tested these a bit too much last week.

In general, I need to be active. If I don't move enough then some of the symptoms (tingling, electricity in my left leg, tripping) start to show up. But if I do too much, then I get exhausted, get pain in my legs once I sit quiet to rest, and I get very susceptible to fatigue like having to take a 3-4 hour nap on the weekend.

I had friends stay over on Friday for the solstice as we went together to a traditional yoga celebration of 108 sun salutations at sunset (no worries, I did not do 108). But the stress (even the good one, i.e. excitement) started to weigh on me in mid-week, then the yoga session, then the lack of sleep from changing bed, and more stress from having to entertain my friends... Just learning.

I call this working the limits. I somehow believe that I need to keep working these and pushing back so that my MS does not gain any ground. It's like warfare, even if I don't like the analogy.

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anaishunter profile image
anaishunter
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3 Replies
RoyceNewton profile image
RoyceNewton

that is a very good idea, perhaps demptying a constantly refilling bucket of water, instead of warfare. A little less depressing I might think

Juleigh21 profile image
Juleigh21

“Working the limits” what a great way of defining it. I balance everything I do every single day. If you’re not familiar with the “spoon theory “, you might want to google it. Take care and don’t push the limits😆.

carolek572 profile image
carolek572CommunityAmbassador

It is a double edge sword, trying to find enough to challenge you, physically, but not too much that you find yourself struggling. I applaud you for your efforts though, and encourage you so that you do not give up, or give in. I too, hate the analogy of fighting 'ms'.

Keep Smiling,

Carole :-D

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