Hi from Alabama

[Sherrea1]

Hi I'm Sherrea I've had MS for 20 years I'm from Mobile Alabama. I just had a attack that lasted 2 months doctor said the damage is probably done and I may be left with these symptoms. I have severe nerve pain my hands are numb and I get that awful hug that no one wants and my walking is different because of weakness. I would love to have the old me back

[Linda3579]

Hi Sherries,

I’m sorry you have had a rough time. I so often say the same thing. I too, wish I had my old self back. I agree with lois. In time your symptoms may get better. Wishing you the best. Kinda

[Sherrea1 in reply to Linda3579]

Thank you

[greaterexp]

Welcome! I’m sorry you’re dealing with these symptoms. My relapse seemed to last for many months, and I thought at each stage that it would be my new normal. But I’m doing so much better. I hope very much that you continue to improve over time and that you find support and encouragement here.

[Sherrea1 in reply to greaterexp]

That’s what I’m praying for but I thank God for Lyrica because the nerve pain was unbearable I’m starting to feel a little bit like the happy funny Sherrea use to be

[greaterexp in reply to Sherrea1]

I’m so glad for you. We do a lot of laughing here and have a little good-natured teasing. I look forward to seeing your sense of humor emerge!

[Iona60]

Welcome! At 2 months, there is hope for improvement.

[Sherrea1 in reply to Iona60]

I hope so

[RoseySawyer]

Welcome! 🌷

[positiveness]

MS sure can be devastating in so many different ways and in so many different times of life. Both invisible and visible symptoms. I hope you feel better. Check with your neurologist about low dose Naltrexone (LDN) and how it may help you.

[Sherrea1 in reply to positiveness]

What is that? This week I have really tried to stay positive last week was horrible I cried all week so I’m just hoping for better days

[positiveness in reply to Sherrea1]

Low dose Naltrexone really seems to work fight fatigue and gives you more energy throughout the days. At 4.5mg, I am even able to go outside in the heat and humidity. Feel free to do some research on LDN or low dose Naltrexone. Feel free to talk to your neurologist about it as well. It's a medication that can be taken along with the other medications that you may be on right now to treat your MS. It's obviously not a cure, but it helps you feel better.

[positiveness in reply to Sherrea1]

I know this doesn't have to do with MS, but Alabama is a great football team. Do you follow it at all?

[Sherrea1 in reply to positiveness]

Roll Tide

[positiveness in reply to Sherrea1]

Hi! How are you doing this week? Any better?

[Sherrea1 in reply to positiveness]

Some how I completely forgot about this community. It’s been a year now and I’m the same my nerve pain gets to a three and I get so excited. If I get stressed over heated or sick it comes back with a vengeance. But I’m handling it better so I would say I still have my sense of humor and my kindness toward others

[positiveness in reply to Sherrea1]

Very good to hold on to your humor and kindness. As far as forgetfulness goes, it happens to all of us.

[Jesmcd2 CommunityAmbassador]

Hi there and welcome. Although the reason does kinda stink. So sorry your attack lasted that long.🙁 Did you get a steroid treatment?

I hope that maybe the Dr was wrong, Sherrea1 😀 and you feel better very soon!

Jes🌠

[awestinsmom]

Me too!

[Sherrea1]

I did two rounds of steroids by mouth. I don’t have insurance so could not get iv steroids. I’m just trying to get use to what may be the new me it hasn’t been easy and many tears have been shed. I hope you are doing well and thanks for saying hi

[Sherrea1]

I like the way you think and that is what I need to believe because feeling hope is a horrible feeling. I started Lyrica and it took awhile my doctor did 2 days at 50mg and every two days I went up on the dose until the pain was almost gone. I was on gabapentin and it didn’t touch the nerve pain. I tell ya nerve pain is no joke it hurts. It was nice of you to write me

[MS_Indestructible in reply to Sherrea1]

I have nerve pain in my legs and feet for 12+ years now. It take a lot of Gabapentin for me. I take 2400mgs/day 1200am & 1200pm plus I take 40mgs/day of Baclofin 20am & 20pm plus 120megs of Cymbalta 60am & 60pm. and I still have some pain but I'm maxed out on Gabapentin. These are only a few of the drugs I take daily. I do understand. It can be overwhelming at times ~terry

[Sherrea1]

Well that was weird I just wrote you something and when I hit reply it went away. I am taking Lyrica I had to work my dosage up to find the right one. I took gabapentin and it did not touch the pain I tell you what nerve pain is no joke it hurts. I have had MS for 20 years and my first attack was like this and I haven’t had anything like that since until now. Thanks for saying hello

[Sherrea1]

I meant to say feeling hopeless is a horrible feeling

[MS_Indestructible]

welcome, we can relate. Hope your doctor will get you some relief ~terry

[pamgarner]

hi Sherra1! I too am from Alabama, (Tuscaloosa).I see a great neurologist from Birmingham.The hardest thing for me with this disease is acceptance of how hard it is to do certain things on certain days, like basic things

[Sherrea1 in reply to pamgarner]

I see Dr. Riser in Birmingham. We just got insurance in January I’m so excited to see her again

[pamgarner in reply to Sherrea1]

a step in the right direction glad you got insurance,i swear the insurance companys rule the world

[RoseySawyer]

Hi and Welcome! 😊 Has your doctor ever mention a plasmapheresis? ❤🌷

[Sherrea1 in reply to RoseySawyer]

No what is that? Who do you see in Birmingham

[RoseySawyer in reply to Sherrea1]

I live VA. Please ask your doctor about the plasmapheresis. It might help some. ❤🌷

[RoseySawyer in reply to Sherrea1]

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