List great other Support networks- - My MSAA Community

My MSAA Community

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List great other Support networks-

Debbie_2 profile image
10 Replies

"Patients like me "

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Debbie_2
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10 Replies
Iona60 profile image
Iona60

I keep getting emails from the CVS specialty pharmacy that they have set up a support network. I haven't tried it. Has anyone else?

Debbie_2 profile image
Debbie_2 in reply toIona60

I haven't tried CVS , i use OptumRX they're good with all my Meds-

greaterexp profile image
greaterexp in reply toIona60

I've gotten offers to join all sorts of support-type groups, but feel that keeping up with just this one is enough. Some things I was asked to join seemed redundant for me. Others may have different experiences in which other groups may be helpful.

Iona60 profile image
Iona60 in reply togreaterexp

greaterexp I'm with you. This group is great! Keeping up with just one group is allowing me to make deeper friendships.

bxrmom profile image
bxrmom in reply toIona60

They handle my Tecfidera rx but I haven't had them try to set up a support network. They try to call to schedule delivery of my rx but I would rather do that online. When I first started, they called right away and then at different intervals when doses would change. Now I get a call from their nurses about once a month or so to check in to see how I'm handling the medication.

Jessie

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

There is Only 1 MSAA Community 😊

kdali profile image
kdali

I like the community at Overcoming MS, but for me it's been more information seeking/sharing and much less about friends surviving the day to day bs.

SlmHarris profile image
SlmHarris

I have looked into many support groups and even chat rooms. They seem to fizzle out, pol are using the site inappropriately, I am not getting what I am looking for or to hard to figure out how to use. Easy is for ME

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toSlmHarris

Hi SlmHarris what are you looking for? Because topics are always welcomed!😊

Jes 🌠

SlmHarris profile image
SlmHarris in reply toSlmHarris

I believe this might be what I am looking for. I loved one of the chat room I was in, coffee time the ladies n gentleman would visit and talk about our MS.

Then we had a bunch of new comers from another chat room and it was a shock. I chose to leave but stayed in touch with some good friends I made

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