MY SKIN
4,916 members1,179 posts

PLEVA

PLEVA

My son is 7 and has PLEVA. I know that it is very unheard of but I would love to find a support group for this awful thing. We got diagnosed after a month of my son being in severe pain with necrotic sores every where from head to toe. Took us 11 doctors to even get a diagnosis. This whole thing has been so frightening not only for my son but myself. Fear that the next set will begin soon. Fear that the meds won't work next time. Fear that people won't listen again. Honestly just trying to find people who know what I am going through and people who can help me to provide emotional support for my son through all of this

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