New member: Ichthyosis. Is there anyone with similar condition in my area?

I'm happy to exchange information on treatment, problems, and on strategies to deal with pain. I would also like some help as I find life very difficult to cope with.

[emma2536]

I was wondering if anybody has ever tried emu oil before? I have been using it on my daughter for 1 year now and it is amazing. It helps keep her moist longer, reduces the itching, and has made a big improvement (along with her other lotions). The Docotors asked what all I use on her and when I said emu oil one of them looked at me and said that is great stuff how did you hear about it and how do you get it, so I told him the story. We love the stuff! I read a bit about it from a book a lady lent me and this it what it said about emu oil. Emu Oil - anti inflammatory, encourages rapid repair of damaged tissue, healing, moisturizes and penetrates multiple layers of skin - a great oil for skin disorders and allergies. I also found a artical on the net about emu oil and ichthyosis. Here is what it said. How is Ichthyosis Treated?

There currently is no cure for ichthyosis. Intensive localized moisturizing may reduce symptoms. Caring for ichthyosis is very labor-intensive - spending lots of hours every week bathing, scrubbing the skin in an effort to shed some of the scales, and keeping the skin heavily moisturized. Caring for ichthyosis is as much about looking good as feeling good.

The use of mild, non-drying soaps – such as Emu oil soaps – is encouraged. Frequent hydration of the skin is encouraged, and since Emu oil is a "tissue nutrient" and helps "feed the skin" Emu oil can help keep the skin moist and softened. Immediately after bathing, apply a generous amount of Emu oil to the skin and allow to penetrate. Then, apply Emu oil to the affected areas several times a day for added moisturization. It is all natural also so that is a plus for me. Sorry the post is so long.

Emma

[Hollander]

Hi I would be interested in trying emu oil where is this available please ? Hope it's continuing to work for your daughter