My mother has been suffering from this unknown skin condition since 8-9 years. She is in agony. Anybody having any clue help please!

[devyani2302]

It is non-contagious, symptoms include severe itching which aggravates on exposure to sun/heat. Her skin has become dark, pigmented, thickened, rough and dry. It even bleeds at times due to scratching when it itches.

[katepoet]

What have you and the doctors rejected as diagnoses?

What supplements have you tried?

Does she have any other diagnoses?

[devyani2302 in reply to katepoet]

She's tried corticosteroids, anti oxidants, vitamin supplements, topical creams, sunscreens and moisturisers.

Some say it is solar dermatitis, some say it is a type of amyloidosis, some docs said it is some form of allergy but all the allergy tests were normal.

[devyani2302]

It isn't psoriasis for sure. Thanks anyways.

[katepoet]

First thing that comes to mind are the B vitamins might help. B3 niacinamide cream, not oral. B12 sublingual or injected. B7 biotin as a powder that is close to 100% - there's a food grade from China that is $20 for about 10 months worth.

[devyani2302 in reply to katepoet]

Won't b12 oral supplements help?

P.s what do you think this is?

Are you a doctor Kate poet? Thanks a lot for the response.

[katepoet]

I am the director of a large online private support group for people with multiple sclerosis and other chronic illness. I have 4 autoimmune diseases myself. I do research on medical issues daily.

Vitamin B12 is fragile and is destroyed by stomach acid so taking oral B12 does nothing for us, unfortunately. There are several brands of sublingual and there is injectible. Often, the injectible is available from the doctor. Here, in the US, it is also available for direct purchase.

[devyani2302 in reply to katepoet]

Thank you so much for your help

[Violetta62 in reply to katepoet]

Hi Katepoet,

There's a very interesting book called The Medical Medium by Anthony William that I'm sure you'll find interesting.

Good luck,

Violetta

[katepoet in reply to Violetta62]

I have read some of his work, thank you!

How's Mom ?

[katepoet]

Of course. Trying to figure out what else might help. For most diseases, inflammation helps them to thrive. Eating a non-inflammatory diet helps knock the illness down to size. It takes some planning to do but it could be worth a try - no gluten, no peanuts or peanut butter, no soy unless it's fermented. Cook potatoes and pasta sauce in a pressure cooker for at least 20 minutes before eating.

[devyani2302 in reply to katepoet]

I am from India. Could you help me with the diet plan for her?

[katepoet in reply to devyani2302]

Maybe it would help if you list the foods you do use and the options you have. Then we can figure out if any are not good and which are the best.

(I work for friends in India for one of my part-time jobs as a technical writer )

[devyani2302 in reply to katepoet]

My mum usually eats :

Breakfast: papaya and banana followed by milk and chapati (home made bread)

Lunch: Rice with veggies with home made curd

Evening: green tea with biscuits or confectionery products

Dinner:Rice with veggies and pulses

Her basic diet revolves around rice. Occasionally she has eggs like twice a week. She doesn't eat any other meat (poultry or cattle). She rarely eats any pizza or pasta or burger or processed items.

[katepoet in reply to devyani2302]

The chapati, biscuits and confectionery products are not ok. They are all inflammatory. The fruit and veggies are very good. The pulses are inflammatory - if they are prepared in a pressure cooker for at least 20 minutes, then they are ok. Eggs are good and rice is OK. Milk should be kept to a minimum - one should try without milk for a week and see if it makes any difference.

Usually, you can tell within a week but for some people, it takes a month to see the difference from changing diet.

One good rule for eating is to eat the rainbow of colors every day - red, green, purple, yellow, etc.

One herb in India that kills bacteria in tests is holy basil. If you are not using it, you might try adding it. It actually kills e coli.

Turmeric is an excellent anti-inflammatory herb. The curcumin in it is best absorbed when we eat a little black pepper, too. Turmeric should be consumed every day if possible.

Ashwaganda and rhodiola are herbal adaptogens that support immune system function and fight depression and fatigue.

Kit Minden on Facebook and in most places.

Anyone who friends me on facebook, I add to our support group there. There are 2 rules - be kind and polite to each other, and keep it private. You are more than welcome to join us.

[devyani2302 in reply to katepoet]

Just added you on Facebook. Devyani.

Thank you so so much for the help. Will be in touch. And I'll try changing my mum's diet. Thanks once again. 😊

[katepoet in reply to devyani2302]

Hope good changes happen for you both!

[devyani2302 in reply to katepoet]

Wish the same for you too Kit. Merry Christmas in advance

[katepoet in reply to devyani2302]

Merry Christmas! The best of holidays to you!