LDN FOR FIBRO: My doctor suggested I... - My Fibro Community

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LDN FOR FIBRO

ratoncita profile image
14 Replies

My doctor suggested I try LDN for Fibro. Has anyone else tried it?

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ratoncita profile image
ratoncita
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14 Replies
VeganLove profile image
VeganLove

A family member just started LDN for a brain injury and told me last week it has been recommended for fibromyalgia. I have not tried it, but open to hearing from anyone with FM as to its effectiveness.

Entela15 profile image
Entela15

My doctor prescribed it for me but I read about all the side effects from others and I still haven’t tried it.

ratoncita profile image
ratoncita in reply toEntela15

Side effects? Like what?

Entela15 profile image
Entela15

headaches, insomnia etc

ratoncita profile image
ratoncita in reply toEntela15

Was yours compounded? I’ve not experienced anything except vivid dreams (not nightmares) and have been sleeping better!

SLCUtah86 profile image
SLCUtah86

I’ve been on 4.5mg LDN for about 6 months and it has changed my life. My pain mgmt Dr prescribes it. I’ve had FMS with MPS for two years. Before ldn I could do one simple task and be done for and now I can do all the things I want in moderation throughout the day without having to question much (until the end of the day). If there are side effects, I haven’t noticed any. I also take 25mg of Seroquel for bipolar depression so I’m quite a mess esp with the two together since they play off each other. Anyways, I hope this was helpful. I don’t think enough people know about LDN for fibromyalgia and I wish they did. My primary care doctor and psychiatrist also recommended I take it and said they saw patients have great improvement of symptoms.

VeganLove profile image
VeganLove in reply toSLCUtah86

Thank you! I have fibro as well as myofascial pain syndrome and have an appointment with my doctor this week, so will definitely ask about it!

ratoncita profile image
ratoncita in reply toSLCUtah86

I’ve only upped my dose to 3.00 mg and no antidepressant just thyroid and blood pressure medication. And, I’ve learned that it can also act as an antidepressant.

Ontherun81 profile image
Ontherun81

Not heard of LDN but will ask to try based in posts here! Thanks😀

Crochet_fan profile image
Crochet_fan

hi, could you clarify what LDN is please? i have fibromyalgia amonngst other things causing chronic pain. many thanks.

ratoncita profile image
ratoncita in reply toCrochet_fan

LDN is Low Dose Naltrexone and it is compounded by pharmacists. For more info go to: ldnresearchtrust.org/

ratoncita profile image
ratoncita in reply toCrochet_fan

There is also a book “The LDN Book”

Crochet_fan profile image
Crochet_fan

Thank you very much for getting back and clarifying this Ratoncita. I will look into this.

w8n4fri2 profile image
w8n4fri2

Haven't tried it because I can't afford it. What has been your experience with it?

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