Jade 0076

[Jade0076]

I have been diagnosed with fibro and no support at all I have vibrating feeling in legs and feet body going hot pains in feet hands legs soothing pains behind yes dry eyes sore fingers I have complex trauma. To its all getting me down as don't have good go. How do you get neurologist can someone direct me thanks

[Sleepy_mum]

Hi huni, you're not alone. I've had fibro since 1999 and I'm here to help with any questions you have or just a shoulder if that's all you need. Everyone's journey is different.

[LeighBlyth]

Hi Jade,

Sorry to here you are in pain. How were you diagnosed/ have you had tests to rule other things out?

Where are you based? In the UK your GP would refer you to a neurologist for further testing if appropriate.

"Fibromyalgia" is a label for symptoms, it's not a diagnosis of a specific disease and tends to be used when the symptoms can't be put down to other conditions.

Ask yourself:

How is your physical condition?

Is your posture (the positioning of your body) good?

Is your body free of tension?

Does it feel balanced and comfortable? Or is your body stiff and tense ?

Do you move well? Or can you feel areas that are restricted?

Be aware how the pains and weird sensations move around your body as you move. We are interconnected from head to fingers to toes and restrictions in one area can have distant sensations.

Based on my recovery, some basic anatomy and how the body responds to trauma, I have an explanation for "fibro".

Restricted Movement, Tension & Pain

In a response to inflammation - caused by injury, infection, trauma, auto-immune/stress and as an attempt to compensate for the lack of central support that should be provided by the main muscles of movement, physical restrictions form in our bodywide web connective tissues that reduce our range of movement, literally stiffening us over time.

These restrictions cause tensions that radiate throughout the whole body, from head to fingers to toes. The sensory information generated by these restrictions are the source of many pains and weird sensations associated with fibromyalgia.

People who use their body correctly are able to shake off old injuries and return to a good posture but those of us that don't, the body becoming increasingly tense, unbalanced and misaligned over time.

Fibromyalgia: A progression of pain when the body is not balanced. Traumas are stored rather than released.

Myalgia

If you are not using the right muscles you are using the wrong muscles which results in myalgia (muscle pain).

The right muscles to focus on are the "5 main muscles of movement".

The 5 main muscles of movement are:

1. pelvic floor Base

2. rectus abdominis Line

Think of the pelvic floor muscles as the Base of the body, a solid foundation that should be active and secure.

The rectus abdominis are the body's central Line. From pelvis to chest, these muscles should be active and elongated, supporting movement of the rest of the body.

Recovery starts from finding your Base-Line, working with these muscles and building the connection between body and mind. Then thinking about the other muscles too. (It was several months before I starting working with the other muscles - Base-Line is the key to healing the body.)

The other main muscles are:

3. gluteus maximus.

4. rectus femoris.

5 trapezius.

The anatomy can be a lot to take in all at once if you haven't studied it before, but keep thinking about how you use your body and build the connection between body and mind.

I'm more than happy to answer questions.

[Missykay]

Sorry to hear your struggling did you manage to get a referral to Neurology ?