Heat wave: Has anyone ever tried a... - Multiple System A...

Multiple System Atrophy Trust

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Heat wave

Schmall profile image
12 Replies

Has anyone ever tried a cooling mat for adults and found it efflective? Hisband is really struggling in this heat and it seems to have affected his condition (or he has very suddenly deteriorated. Who knows).

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Schmall profile image
Schmall
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12 Replies
Yanno profile image
Yanno

First of all, sorry but we haven’t tried a cooling mat. However, Jackie loves the sun but has been really struggling this week. Our specialist neuro physio was with us today and she said every one of the clients she has seen this week seem to be having issues. I know it’s obvious, but must try and keep fluid levels up which will help.

Take care, Ian

Schmall profile image
Schmall in reply to Yanno

Thanks. Have been keeping his fluid levels up. It hasn't made the slightest bit of difference sadly. We've been doing cool baths before bed which seems to help a little but he heats up again quite quickly.

Hi

Not used a cooking mat but all I do for sue is increase the water and keep a fan on her all day.

I do have an A.C unit if I need.

Paul

1burtonst profile image
1burtonst

Yes my husband has one and he finds it helpful, got ours from the range and wasn't expensive x

StephWx profile image
StephWx

Hiya, from my past experiences with my Nan, the heat would really affect her and almost wipe her out completely which would make her symptoms worse for a few days after, so we used to just keep her cool as much as possible. Ice lolly’s, fans, making sure she’s in the coolest room possible & cool clothing etc.Steph x

Hello, the advice we had was to keep the room the person is in nice and ambient rather than try to adjust something on their body, because the body is struggling hard enough already to regulate their temperature. But I guess it's quite individual Kx

Schmall profile image
Schmall

Thank you everyone. Some really useful advice.Really helpful suggestions. Already increased water and trying to keep as cool as possible but, yeah have been focusing on adjusting his temp rather than the room temp.

Ruffner profile image
Ruffner

I have Parkinson's Disease and have this problem. A powerful fan works best for me. I use it day and night. My husband has MSA and he is always cold. Is it common for people with MSA to be cold in warm weather?

Schmall profile image
Schmall in reply to Ruffner

My husband (with MSA) is usually on the cold side but this heat wave he's really feeling it and is really struggling.

Droflet profile image
Droflet

I remember one day when somebody brought Nancy back on a very hot day and left her in a room without the windows open. She became almost comatose before I arrived to discover what had happened. MSA affects the ability to sweat properly so sponging with cool water can help to compensate for this and bring the core body temperature back down.

Schmall profile image
Schmall in reply to Droflet

Thanks. That's useful.

CanAmK profile image
CanAmK

What works well in our home is a Frogg Togg cloth. You wet it and put it in the fridge to get cool and then can place on neck (or anywhere) Very helpful

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