Continuing Health Care

Have you been made aware of this by the NHS?

[Paul_and_Sue_Wood]

CHC is financial support for people who need medical support. It is complex to get approved.

[Hidden in reply to Paul_and_Sue_Wood]

Thank you for your response.

[Hidden in reply to Hidden]

Can't remember where you live but just to say it doesn't apply in Scotland, it's a different system. Kx

[TK-67]

Apologies in advance but our experience is far from good I'm afraid. it's really complicated and not administered by the NHS - it is done by councils and local authorities. We started the process for mum (in a specialist v expensive nursing home) over a year ago. Thanks to the pandemic and then a split decision we're still waiting and still self funding. It's an awful postcode lottery too, some people are having more luck than others and with funding under pressure that doesn't help either.

[writerinlimbo]

Our neurologist got Macmillan involved in my husband's care who applied on his behalf and it was approved within 24 hours. Needless to say he is in a very bad way and close to the end.

[Hidden in reply to writerinlimbo]

Sorry to read that. It’s such an unnecessary stress.

[Annietutt in reply to writerinlimbo]

You have my heartfelt sympathy for the situation you are in. I am pleased your husband is receiving the specialist care he needs as he approaches the end of his life. I hope you are getting appropriate support too. X

[writerinlimbo in reply to Annietutt]

Thank you yes, amazing support from our neurologist, the council OT, Macmillan, our local community nurses, SALT and the assistive technology team. Listing them all in case that assists others with whom to turn to for support. Feel so fortunate to receive the level of care we do - just wish everyone's experience was the same.

[Courgettegrower]

Just been turned down for the third time. Insufficient nursing needs!

[Annietutt in reply to Courgettegrower]

It’s really hard. You don’t need the extra stress when you are in this situation. I sympathise, not that it’s much help to you.

[Hidden in reply to Courgettegrower]

Have you looked at the paperwork yourself Courgettegrower? There is also the appeals process etc. I support it depends on what stage the MSA is and what are the symptoms that need looking after. I don't know your medical details but it is so worth reading up about it... Failing that, maybe get in an expert... Good luck.

[Courgettegrower in reply to Hidden]

Thanks. Our social worker and the NHS CHC assessor tried really hard but to no avail. Too much care needed which is not ‘nursing’. Our social worker says she will help is to go again in the future.