Possible Diagnosis

[Sunshine1932]

Hi all

I'm new and looking for a bit of advice.

I'm due to have a MRI on my head at the end of August due to having the following symptoms

Entire right side of body has a mixture of nerve pain, pins and needles and numbness. Mostly mild but occasions it gets worse.

blurred vision on occasions

extrme fatigue which is weekly

heat intolerance which started 18 months ago and my lord its horrible in hot weather. I have become a vampire when I previously loved the sun

weak bladder meaning always needing to go

sore feet with occasional off balance

Brain fog

I also have a b12 deficiency so I have always put my symptoms down to that but I self inject 3 times a week and above symptoms are not improving.

I also had Vit D deficiency and low ferritin and occasionally thyroid bloods are out of whack as if I'm overactive.

my question is to those who have MS. Do my symptoms sound similar to that of MS or am I needlessly worrying.

Thanks for reading.

[leking1]

Hi Seren1932. I was diadnosed with MS 42 years ago, and I still don't always recognize MY symptoms when they appear. I would suggest that you not worry about it, There is no evidence suggesting MS, and after the MRI you can discuss anything that it may, or may not show, with your Dr. Best wishes!

[Sunshine1932 in reply to leking1]

Thank you

[Fnd_kiwi in reply to leking1]

did you get a diagnosis easily or is it something you had to wait years or decades for like many?

[leking1 in reply to Fnd_kiwi]

Hi Kiwi, My Dx was relatively fast, although the MRI was not invented yet. I was diagnosed after a little less than 1 year, due to the results of a spinal tap. My Dr. at the time said he was 99% positive it was MS, and the 3 other Neurologists in the office agreed. In my frustration, I asked what it would take for him to be able to give a diagnosis of 100%, and when he said an autopsy, I let it go. How are you doing?

[Fnd_kiwi in reply to leking1]

wow, well that is some answer! Im glad you are alive and replying and not finding out that last percent! Im not doing great currently, im in a flare of symptoms but referrals to neurology being declined then one was accepted then declined a day later..Its beyond weird ...and disappointing the gaslighting going on lately in health services seems a univeral thing.

i was tested for MS 2 years ago and told I cant have it because i had a clear spinal tap ( since found out this is common) and brain mri had non specific hyperintensitites, again seen multiple seminars stating this can be very common too. what are we to beleive!??! especially when you meet others that all had these same things and still had ms.

[leking1 in reply to Fnd_kiwi]

I am so sorry that you are still having to deal with all of this. Personally, I hope you don't have MS, because I wouldn't wish this disease on anybody. My best advice is to eat healthy foods, keep moving forward, and do what you love to do. Be Happy. Linda

[Fnd_kiwi in reply to leking1]

EDS i am currently diagnosed with is not much better to be honest, the only differnce medically is you get fare far moe help for ms, here many drs dont even know what EDS is, and many wont treat the comorbidities etc,

i have had what ever os going on for over. decade, so if I do, ill already been living with the attacks if that makes sense. The last put me into wheelchair.

[Tazmanian]

Sorry to hear about your troubles but everyone's ms is different. Check with your neurologist

[Donought]

Hi Serene,

Did you ever have a confirmed diagnosis after your MRI? I have just had my MRI and have the results but not yet seen the neurologist (I went privately for the MRI). I have all the same symptoms as you.

From my googling I think the diagnosis for me is MS, although I will wait for the neuro to confirm this. My MRI states:

Findings:

There are bilateral frontal and parietal juxta cortical and bilateral periventricular T2 and FLAIR hyperintensity plaques.

right temporal and bilateral peri trigonal plaques

left cerebellar tiny cortical plaques

Impression:

Signs of inflammatory demyelination in the brain as described for clinical correlation.

Hope you finally found your answers.

D

[Sunshine1932 in reply to Donought]

Hi

Thank you for reaching out.

I get my results this Friday and I feel it will show some signs of MS.

I run out of B12 for 2 weeks and my word was i in a lot of pain. It was nerve pain on the right side of my body. As soon as I took my B12 again the pain reduced.

I shall update when i get my results. It will be interesting to see what your interpretation is.

[Sunshine1932 in reply to Donought]

Hi Donought

Unfortunately I didn't get my call for my results for the second time. As soon as I find out I shall let you know.

[Sunshine1932]

Hi Jennive

Thank you for reaching out. Did the Dr see anything on your MRI scans or did they only when they did the spinal tap?

[mikedoc60]

It sounds like MS but it could be a host of other things. Lyme disease is very like MS. In my case nothing showed up until they did a MRI with contrast. I was told that I had lesions in my spine and brain. Mainly my left leg is week and my legs used to jump at night almost like restless leg syndrome. My balance is affected and so are my bathroom habits sometimes. I am PPMS so there is no day off from the symptoms.