This afternoon I went to my first forum in Newcastle. The format was very much as
I had imagined, with Haemotologist speakers from the locality, and I was pleased that they answered many of my unanswered questions about the drugs and progression of the disorder.
Although there was not a full audience with numbers being fairly low, but I expected this, there was a lively question & answer session at the end of each presentation. This was great ,as you heard other peoples' experiences with drugs, how other people coped with their symptoms and a little about how people had tried to overcome them.
The PPT presentations included data which at times was complicated and I felt I would have loved to have a copy of some of the slides to read where they compared the results of drug trial/use. This was very interesting but hard to digest in a short period.
Maz - you did an excellent speech, entertaining and close to our hearts. Lovely!
There were two periods, during a tea break and at the end, where you could chat to the professionals and other people, which could have been a little longer but overall well worth going to and I would definately go again. Well done everyone!