I attended my 3 monthly hospital appointment today and for the first time saw the nurse specialist instead of the Consultant. It was the first time I was able to relax and ask all sorts of questions, he was so nice and I didn't feel hurried at all. I asked him if he had other ET patients and he said he must see at least 4 MPN patients at every clinic and overall he guessed they probably currently have about a 100 MPN patients. I do not attend a specialist MPN hospital just the regular hospital in our nearest town.
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