Not really expecting an answer but feeling so anxious at the mo, I do have some life challenges going on at the moment, but this seems to be like riding a horrible wave one minute I’m ok next I’m thinking about all that could go wrong. I’ve applied to get a buddy so hopefully that will help but I’ve only just done this so not had anyone assigned yet. I practice mindfulness, I meditate I exercise I read everything I can about personal development, but this period of the last few week had been super challenging. I guess if anyone had any other coping strategies that would be amazing.
Thanks for you time.
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Jasbak22
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hi good morning. Anxiety is awful I have suffered for years. I look for 5 things around me. Starting with the same letter and concentrate on that it wipes out the anxiety for a bit and helps me cope. Also when you feel really bad find a drawer to sort out or a cupboard steer away from those anxious thoughts good luck
yes the challenges are mostly temporary but I think it’s a combination of my condition that’s causing this, plus lack of sleep and trouble eating so a bit of a combination. Thanks again for responding so quickly.
It might be worth trying to get an appointment with your GP to talk through everything you're experiencing . I have always found going outdoors helps me, it used to be running but now limited to walking preferably where I can enjoy nature and wildlife, also can lose myself and my worries in an hours gardening .Look after yourself and please keep us updated.
Hi Jp I do walk every morning, I mainly suffer with this anxiety at night which affects my sleep, but do have a doctors appointment now. Thanks for your reply.
We all get overwhelmed at times. managing the stressors associated with life when you have a chronic condition can be a challenge at times. We all have our own coping strategies. Here is my list.
1. Support from my family, friends, and faith community.
2. This forum (my friends and MPN Family)
3. Maintain your sense of humor and find ways to have fun no matter what.
4. Surround yourself with things that are positive and lift you up.
5. Mindfulness practices - I practice Qigong.
6. Say the Serenity Prayer every day and take it to heart!
7. Educate yourself about your condition(s). Knowledge is power.
8. Create a high-quality treatment team who you trust.
9. Advocate for yourself. Assertive patients receive higher quality care. Passive patients do not. Remember that you are in charge of your care. It is your goals, priorities and preferences that must drive your treatment. Empower yourself to deal with the MPN.
I have been blessed to have a relatively indolent form of a MPN. I have lead a long rich life and plan to continue to do so despite what happens with the MPN. Sure - there have been some challenges with the MPN and the other related and unrelated medical issues I face. Sometimes you do, as the military folks say, have to "Embrace the Suck" or just "Suck It Up Buttercup." However - it is not all "Suck." There is plenty of good in life to enjoy and embrace. As the prayer says, I seek the serenity to accept what I cannot change, courage to change what I can, and wisdom to know the difference.
More than anything else at this point, know that you can manage this. There are ever-more treatment options and very real hope for MPN treatment improving in the foreseeable Have confidence that you will be one of many who do manage the MPN and the other challenges successfully.
Sorry to hear you are struggling with anxiety at the moment. All the replies, especially Hunter's, are very helpful and asking for a buddy is a great start. When I have lows, I like to go for a walk and enjoy the world outside, at a local park or equivalent, and immerse myself in nature and just seeing young children playing and dogs too really helps as for a short time you can forget your worries and realise there are some good things happening too. Classes like yoga or pilates are also very helpful but so is a cup of tea/coffee and catch up with a friend. Remember to eat, drink and sleep enough as this vital too. Thinking of you and sending a virtual hug. Remember you are not alone in this.
it’s a thing that the mpn site run by Guys hospital do. It’s put you in touch with a fellow sufferer so you can talk about it on the understanding that it’s not medical advice just a chance to talk with someone in a similar position b
Anxiety I’ve concluded comes with the territory (PV). Hunter has great points that i’ve used and have found helped; and I also find immersing myself in a good tv series or a book to concentrate on takes my mind off me and the anxiety.
Hope you find a good balance with all you already do and anything you might add to it. Be well.
Just wanted to throw my hat in there buddy... You know where to find me & you are always welcome to pay a visit anytime to our usual Six weekly (6) (MPN-MATE RF), virtual Catchups we have down here etc...
Next due date is always Posted in advance... All MPNers are always welcome of course...
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Done being passive
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