SCT update: It was a year ago today that I had my... - MPN Voice

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SCT update

SRH55 profile image
41 Replies

It was a year ago today that I had my SCT & am feeling pretty well at the moment. Things were very tough to start with & I wouldn’t have got through it without the love & support of my family, especially my husband & my 3 grown up children, also the lovely supportive messages I received from my friends.

I shall be forever grateful to my donor in America, the Anthony Nolan Trust fir finding my donor & the love & care I received from the bone marrow unit at the Leicester Royal Infirmary.

Maybe I’m entitled to 2 ‘birth’days now!!

Sending best wishes to everyone.

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SRH55 profile image
SRH55
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41 Replies
hunter5582 profile image
hunter5582

Glad to hear that things are going well. Wishing you many more happy dual birthdays.

Spanelmad profile image
Spanelmad

Definitely 2 cakes!!!

Cja1956 profile image
Cja1956

Hi, I just saw your post on the Mpn facebook site. Congratulations! May you continue to feel better and better

JediReject profile image
JediReject

Congratulations on your 1st Re-Birthday , , it's a milestone event for those of us fortunates who have survived the rigors that opting for SCT can expose us to. You are right to acknowledge how important having supportive family /friends is and of course the generosity of your donor. Not forgetting A.N. and your wonderful care team. Along with your fighting spirit they have all contributed to making nothing short of a miracle happen in my opinion. As it was for me a number of re-birthdays ago.I'm pleased your doing well and may you have many, many more birthdays, re-birthdays and of course cake.

Regards -Chris

lizzziep profile image
lizzziep in reply toJediReject

Nice to see your name in lights again! Hope you’re doing well 😁

SRH55 profile image
SRH55 in reply tolizzziep

Yes, I am thanks.

SRH55 profile image
SRH55 in reply toJediReject

Thank you. How are you doing?

JediReject profile image
JediReject in reply toSRH55

Well suffice to say I'm ticking along reasonably happily and still smiling through. I have a few issues stemming from my GVHD (still active)along with treatment of same but tis a small price to pay for a second bite at life. One of the main joys is being around for my family especially our Grandkids and watching them grow, far too quickly I might add. And at the other end of the scale I've been able to help my dear old Dad in his twilight. Although I had a rough ride and a long complex recovery I have no regrets and count myself a very lucky chap indeed. . . . . Chris

TB66 profile image
TB66

🎂 celebrate both and enjoy life😃

Smdg profile image
Smdg

happy rebirth day x

Maurabawn profile image
Maurabawn

Good morning! Just read your post. Thankyou for sharing good news! Many happy returns! X

lizzziep profile image
lizzziep

Good news, celebrate well! 😁

Yanico profile image
Yanico

good news happy rebirthday 🎉. I too am under Leicester Royal Infirmary.

TB66 profile image
TB66

my husband had his cancer treatment at the Leicester Royal Hospital and I have nothing but praise for the staff and his consultant… that is where I’m having my treatment.. so feel I’m good hands 😊

LFCLove profile image
LFCLove

So good to hear you are progressing well. Sending you my best wishes and long may it continue.

Am off to Addenbrookes today to start my SCT hopefully in about a weeks time.

Will raise a cake to you tonight😋

G

🤓

JediReject profile image
JediReject in reply toLFCLove

Good Luck ! It's all doable, keep your belief,, , trust in the process and your care team.

Best Wishes -Chris

Inca profile image
Inca in reply toJediReject

Great Chris to see you on site,I often wonder how you are,I don’t get on much myself now,M F I find hard to cope with & the horrendous heat we have here,+the transfusions & injections😱Keep going & as well as possible Chris.🥰

Scaredy_cat profile image
Scaredy_cat in reply toInca

Saw your reply. Sorry things are bad for you. Is a stem cell transplant out of the question for you?

Inca profile image
Inca in reply toScaredy_cat

No Chance Scaredy…..I am 84!!!

Lucky to be still alive I think!

You keep well ,I have fought this for 14 yrs now,just last few weeks not my usual get up& go.Heat here in S W Fr is really difficult to cope with,even fit & well folk are falling by the way side😫😫Sally

Scaredy_cat profile image
Scaredy_cat in reply toLFCLove

Good luck. It is hard going for a while but can get better

JP1952 profile image
JP1952 in reply toLFCLove

Good luck.

SRH55 profile image
SRH55 in reply toLFCLove

Thanks. hope all goes well for you, let us know how you get on.

Gaithersburg profile image
Gaithersburg

Fabulous news so pleased for you. Definitely 2 birthdays - rude not to! Best wishes and thanks for sharing your journey.

ainslie profile image
ainslie

congratulations and thanks for posting an update 👍

KLCTJC profile image
KLCTJC

so glad to hear!!!! ❤️❤️❤️❤️❤️

Solyesh profile image
Solyesh

Congratulations! May things continue to progress well!!

SRH55 profile image
SRH55 in reply toSolyesh

Thanks.

MFBMT2011 profile image
MFBMT2011

one year down and plenty to go. Chris h

Minify profile image
Minify

What a wonderfully positive post. Congratulations !

light profile image
light

Enjoy your better time. Many blessings and double Bdays.

Meatloaf9 profile image
Meatloaf9

👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍 Best always, great news!

Mishie14 profile image
Mishie14

what a fabulous update! Very happy for you to have hard times behind you. By all means a rebirthday is called for. Thank you for sharing your SCT success. It really helps knowing good things do come from going through a long difficult journey. Best wishes.

SRH55 profile image
SRH55 in reply toMishie14

Thank you.

ETinNYC profile image
ETinNYC

Shirley, what a brilliant milestone. So incredibly pleased for you, that you're able to celebrate this special day, feeling well. This definitely calls for celebrations...cake at the very least. Sending big hugs from NYC.

SRH55 profile image
SRH55 in reply toETinNYC

Thank you.

Scaredy_cat profile image
Scaredy_cat

Glad to hear things are going well for you. I found things kept on improving

SRH55 profile image
SRH55 in reply toScaredy_cat

That’s good to hear.

JP1952 profile image
JP1952

What a lovely message. May you continue your recovery and enjoy a healthy life.

Bullace profile image
Bullace

So glad to hear this news. Best of luck to you. Enjoy your double birthday!

CanadaG profile image
CanadaG

i'm so glad to hear that you're doing well and the treatment was a success!

Tipsy2023 profile image
Tipsy2023

Many celebrations to come .

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