Restarting Pegasus : As per earlier posts, I was... - MPN Voice

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Restarting Pegasus

DougyW profile image
5 Replies

As per earlier posts, I was happy to start Peggy on 45mcg per week. After 3 months I had to stop due to my neutrophils dropping below 1. After a 2 month break I restarted taking everyother week. After 4 weeks my neutrophils have again dropped but are 1.2. My haemologist said let's keep going for another month to see if the neutrophils stabilise. Fingers 🤞.

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DougyW profile image
DougyW
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5 Replies
Spanelmad profile image
Spanelmad

Good luck

hunter5582 profile image
hunter5582

My NEUT dropped below 1.0 one time while on Besremi 175mcg but popped back up and has stayed above 1.0 since. Hope you find the PEG works this time.

Lyndjs profile image
Lyndjs

Hope all goes well for you this time xx

Purplechoclover profile image
Purplechoclover

Hope everything goes better for you this time around xx

DougyW profile image
DougyW

Latest Update. My HCT is still requiring venosection approx every 6 weeks. Also my Neutrophils are dropping to the 0.5 point before increasing back up to circa 2. I have a Haematology appointment on Friday 13th. Think it's time to try something else. I'd like Rux but not sure the English NHS will spring for that.

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