Searching for a patient peer

[Hatchie]

While the forum is a great source of information, support and advice. I'm feeling very "special" for the lack of a better work.

It would be great to connect with a PostMF/MF patient below the age of 45 who has had a SCT or is considering to have one in the next 12 months.

While disease at my age is rare there must be someone out there.

Thanks

[Ebot]

Hi there. MPN Voice offers a ‘Buddy Scheme’. Check out the MPN Voice website. If there isn’t someone who fits your exact profile, there might be someone in a similar situation who can offer support and insights. Wishing you all the best.

[Marchhare7]

Hi Hatchie. I understand your call out. Its a difficult world to navigate. Im in the UK and now aged 47, nearly 3yrs post SCT. I was 44 when i was diagnosed with triple negative MF stage 3 and had my SCT the same year in 2021. My donor was an Unrelated 10/10, 31 yr old male from germany.

Im happy to chat, answer any question i can help with. I also wont be offended if you choose not too. Take care of yourself