myasthenia gravis

[Jazzman7]

has anyone experienced this autoimmune disorder along with thrombocythemia?

[william-Indo]

Sorry to hear you got MG.

Pls be careful with this disorder, because may attack system respiratory failure.

The sign is drop of eye lips.

Here is the diagram of MG.

May it help.

You need to see Neurologist asap.

Cheers

Myasthenia Gravis

[Jazzman7 in reply to william-Indo]

thank you for the chart and response! Seeing oncology tomorrow morning and making a plan.

Best wishes to you!

[william-Indo in reply to william-Indo]

Sorry, the chart uploaded cut in half.Here is the complete.

This is the article related to MG, may it useful.

ditki.com/course/pathology/...

Cheers

Myasthenia Gravis

[william-Indo in reply to william-Indo]

The drugs need to avoid

myaware.org/drugs-to-avoid

[Jazzman7 in reply to william-Indo]

great content, very helpful

Best…

[artydutch]

I have sarcoidosis and MF. Sorry to hear you are also affected by two diseases!

[Dooright]

Sorry to hear this. It can be overwhelming at times when you have more than one condition to cope with - do you know what treatment you will be receiving?

(Like ArtyDutch I have pulmonary sarcoidosis (since 2006) and ET (since 2014) and fibrosis diagnosed last year).

[Jazzman7 in reply to Dooright]

Appreciate your thoughts! Dealing with ET is a challenge sometimes. Other issues do come along. I wish you well in dealing with your health!!

Thanks

[gardner99]

No symptoms of it to date. Best wishes in managing it J.

[EPguy]

While there are treatments for MG, you should want to watch the progress of this new treatment, Nipocalimab, that uses a new mode of action. Just reported last week:

prnewswire.com/news-release...

With a successful phase 3 result they should be seeking approval some time soon.

I care about it for that 2nd part "Nipocalimab is the first ... to show efficacy in SjD, one of the most prevalent, debilitating autoantibody diseases that has no approved advanced treatments.

But this is only ph2.

[Jazzman7 in reply to EPguy]

great tip. Helpful. I’ll watch this closely.

Many thanks to you !