Hi . I have been on peginterferon for just over a year. Counts are now great and the MPN specialist has said complete haematological response. Just got allele burden results back and gone from 28% to 30% . Not too worried as he did say they don’t fully understand the significance but curious . And it would have been nice to have a reduction.
Seeing him again early July so will discuss further then
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Sprat19
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Great that the Peg is working so well for you! On the allele burden, do you know if they are comparing apples to apples? It can be measured via a blood test and also via bone marrow and the values are not necessarily the same.
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