forum Antrim and Belfast

[Simris]

Good afternoon,

I would like to say how terribly disappointed I am that Antrim and Belfast forum has had to be cancelled, I was diagnosed October 2019 and have long awaited attending something like this to chat with like-minded people. Since diagnosis I've felt very isolated because I've not been able to be in contact with anyone with same condition (ET Jak2) who I could chat with to alleviate any concerns I have re fatigue etc. I would like to thank all the organisers who have worked so very hard to make this forum go ahead whilst having to cancel it.

PS.....if there is anyone out there with same condition as myself living in or around Co. Antrim I would be very happy if they could contact me!!!!!!!

[Assoonas]

Hey I am just outside Belfast in Comber and like yourself was really looking forward to the forum which sadly had to be cancelled. The joys of living in Northern Ireland lol

[Simris in reply to Assoonas]

Absolutely......very disappointing really!!!!

[EmeraldA]

Hi, I live in Belfast. Diagnosed with ET Jak2 in March 2020. Happy to chat.

[Simris in reply to EmeraldA]

Hi, thank you for your message, great to hear from someone with ET Jak2. Happy to chat with you anytime, I've not been able to find anyone with same, despite asking haemo and CNS, that's why I was so disappointed forum cancelled. Happy to be in touch with you 💖