I'm due to give myself my 2nd dose today. My CNS advised that it's got to be taken weekly and within an hour of the first dose. My first dose was 15:15.
I note that the general advise on here is to do the injection on an evening. So I'm wondering if it would be ok for me to move my time by a half hour each week so that eventually I'm doing it on an evening? Did anyone else do that?
I'm on Besremi so it's not identical but both are INF medications. My Dr had no trouble with even a 1 day shift, which I did once to re-set the day of the week.
Considering the wide variations in dosings we see here, from 1/week to once per three or more weeks, it would seem quite strict to care about a half hour.
Are you able to ask the CNS what the info source is for this precision?
I think your nurse should go and recheck the information they are giving out. Sounds like old twaddle to me. I take mine mid morning but if I have a busy day I take it late afternoon. I can’t see why a weekly dose should be kept within an hour’s schedule. After all if we follow the instructions to take it before bed with paracetamol the nurse would need to see you at bedtime to show you the first injection. 😂
😁 that thought did occur to me too
My experience is, I take mine when it suits me. Generally within a day of my regular day, but I also sometimes miss a week when I’m on holiday. My platelet counts, which are stable on interferon, don’t ‘unstable’ at all. This is all with the approval of my consultant who explained that it’s fine to do this due to the slow release action of the drug.
I agree with SuET2017 - I take mine at whatever time it fits into my day/evening, and I also occasionally skip a week to avoid having to travel with medication. My platelets have seen a steady reduction and are now stable, so this approach hasn't negatively affected my condition.
It won’t make any difference if you just swap times. I take mine in the afternoon because I found that the side affects kicked in a few hours later. Even now I vary my times. If we go out for a meal early evening I’ll take it when I come home.
I bet any MPN nurse/ medic will cringe reading this lol
Haha, lucky you no side affect in my opinion just change the times to suit you. Good luck
I have shifted admin time by several hours on a regular basis based on scheduling needs. PEG is a slow release medication that is only taken once per week. In a hospital setting the 1-hour rule would be standard procedure fo any medication. At home with PEG I can't see thst it would matter. Suggest talking to your pharmacist about dosing time changes.
That would make sense because I think she also works on the chemo ward sometimes
I have changed my by several days and a few hours. I take Peg. You do what is best for you.
I’ve always taken mine whenever I want (within reason) I aim to keep the doses at as regular intervals as possible but often may switch a day or time to suit.I’ve never been told timing should be that strict so I really wouldn’t worry.👍
I’ve done everything above.
Also whatever reduces your stress is best.
Night admission was best for me for the first 5 years. Now morning is best to reduce my insomnia.
I’m on peg weekly too. I take mine before going to bed so the times vary quite widely. I was told I could take it anytime within 48 hrs of my usual time when I ran out. I wasn’t told you had to take it within a certain time from the previous dose, just the same day
Hello! I inject Pegasys at any time of day on the scheduled day. I once forgot ( well, this was because I was partying) and injected the day after with no adverse effect. Nothing has been said to me by the haematologist or nurse about sticking to a strict hourly timetable on scheduled day.
I have the same experience as the other people here. I was two days late for a dose once because my pharmacy messed up delivery and my doctor told me not to worry if this happened occasionally. I also inject it whenever it's convenient during the scheduled day.
First Injection of Pegasys
Pegasys Update 1.0
Pegasys starting dose
Pegasys Dosing
Pegasys Delay 
