Further update from Cancer52

[jillydabrat]

Heard today that the Mail on Sunday is running my story on having PV. I am hoping this time it will include my comment about MPN Voice.

[Scottishterrier]

That is great jillydabrat good on you you know what they say any publicity is good publicity I tried with help from my local msp and even the tory msp to get more cpn's in Scotland and also training new GPS trained in mpn because I found every time went to go gp and asked could it be my et reply dont know call your consultant also wear my mpn t shirt with prideStay safe

Best wishes

Scottish Terrier xx

[JediReject]

Hi Jill , , , that's good Thanks for alerting us to this , as you say hope MPN Voice is highlighted too. . Well done x

[Superwoman]

Thats great Jilly, we have the Mail on Sunday, will look forward to reading.Jean x

[hunter5582]

Good news. Please post the link if you can.

[mark382]

Don't normally get a paper, but will get the Mail this Sunday. Thanks for the publicity and heads up when story will run.

[MFBMT2011]

Well done. I will risk the wrath of my youngest son and buy the newspaper on Sunday! Chris

[azaelea]

Well done Jill! Will make sure I get a copy on Sunday.! Fran

[Mazcd Partner MPNVoice]

Hi Jill, that's fantastic. Maz x x

[Tico]

Is it this sunday Jill? Tina.x🤗

[poly2]

Hi Jilly. I'm so looking forward to your story. Im 59 diagnosed 3 years with polycythemia jak 2. Taking hydroxycarbamide and apixaban. I feel the only place we're listened to is on this site. I am struggling with the fatigue and bone pain. Sick of being pushed from pillar to post. Gp says it's down to mpn. Consultant says it's not. Just keep being given painkillers and another sick note. I think I've resigned myself to the fact that i will have to quit work due to the pain. Is there any one else out there in the same situation and managed to claim any benefits. I applyed for pip a couple of years ago but was refused. Any advice would be appreciated. Thanks.