Searching for ET specialist

[Kiziria]

Hi everyone, I've been diagnosed with ET 8 years ago. However, Im from Tbilisi, Georgia and, unfortunately, I don’t have any haematologists specialised in MPN diseases.

Recently, I found this amazing platform (MPN Foundation website) and I was wondering if you could recommend any specialist who does an online consultations?

Thank you very much!

Marina

[Ridenez]

Hello Kiziria. I have PV and am Jak2+.I am currently on Hydroxyurea 500 mg daily and counts are coming down.I was diagnosed in July of 2020 so rather new and still trying to wrap my head around the intricacies of this disease.In regard to a specialist I am fortunate to have one of the top guys in the world at Mayo Clinic Rochester Minnesota. His name is Dr Ayalew Tefferi.My initial consultation was at the clinic as I am only 100 miles from it. I now have televisits via voom on a three month intervals.The phone # for appointments is 1-507-284-5363. Best wishes to you. Also you might look a Mayo Clinic in Jacksonville Fl. as I would assume that would be closer to you.

[Kiziria in reply to Ridenez]

Ridenez , thank you so much for the information, this is so helpful!

Good luck with your treatments Ridenez. Best wishes to you! ✨

[Ridenez]

Sorry I didn’t relalize you didn’t live in USA. I thought you lived in the state of Georgia not the country.Anyway the Mayo Clinic is world renowned and has patients from all over the world.Good luck and best wishes!