Dupuytren’s contracture and PV

[Innessant]

Have just been diagnosed with Dupreytrens contracture (hand tendon complaint) and doctors mentioned a possible link to PV. Has anyone else got this lucky combination? I am 64 Male and asymptomatic with PV since 2013.

[swimswam]

Interestingly I also have Dupreytrens Contracture. I have ET but no-one has ever suggested a link. Strangely although I still have a slightly curved little finger I think it seems to have improved somewhat since I’ve been on Interferon, but that is only my opinion.

[Innessant in reply to swimswam]

Thanks for comments. I am just diagnosed with DC and not 100% certain that this is correct diagnosis.Still early stages and stiffness only but cannot make a fist.Whatever works right... Lets see....

[Lin8n]

I have Dupreytren conteacture and Et didn't know there was a link diagnosed over the phone last March 2020 on hydroxycarbamide.. Still not had any off it explained

[GarciaB]

I was diagnosed with PV 5 years ago. I take 1500mg Hydrea daily. Occasionally I suffer with bouts of extreme hand cramping. My fingers curl up and it looks like an alien trying to escape my forearm. I find that staying hydrated and drinking a high potassium sports drink like Body Armor helps

[Innessant in reply to GarciaB]

Intersting... I do not take hydrea. Again, the link is speculative.But thanks for sharing.

[Stephen399b]

I have had Dupytrons since my 20s and it is hereditary, as my father had it. I was diagnosed with ET in 2016 and would never have thought of a link. I do get hand cramps, which I think have got worse with the HU? Dupytrons was known as the 'Cobblers disease' as it can be brought on my continual and excessive trauma - or chronic alcoholism!! Neither in my case. Many people get it and there are many new treatments, that can be given by the GP as opposed to the surgery that I had 50 odd years ago.

I suspect that we are all part of a statistical anomolie rather than a causal link - but who knows?

Interesting though.

Stephen

[Innessant in reply to Stephen399b]

Agree thanks for the feedback.Also called Vikings disease...as genetically more likely in north European males after age 50.Do you get injections? Any other treatment? Would be great to "loosen" up the hands...

[Dodders]

I had DC, with my finger operated on over 20 years ago. It's been fine since although I do now have a hard pea sized lump in the palm of the same hand. Diagnosed with PV in 2005, transitioned to MF 2017, transplant 2019. Interesting if there is a link, not heard this before.

[Innessant]

Thanks. Good luck with the handling of the MF....I see this link as a coincidence at this stage.