Have just been diagnosed with Dupreytrens contracture (hand tendon complaint) and doctors mentioned a possible link to PV. Has anyone else got this lucky combination? I am 64 Male and asymptomatic with PV since 2013.
Dupuytren’s contracture and PV: Have just been... - MPN Voice
Dupuytren’s contracture and PV
Interestingly I also have Dupreytrens Contracture. I have ET but no-one has ever suggested a link. Strangely although I still have a slightly curved little finger I think it seems to have improved somewhat since I’ve been on Interferon, but that is only my opinion.
I have Dupreytren conteacture and Et didn't know there was a link diagnosed over the phone last March 2020 on hydroxycarbamide.. Still not had any off it explained
I was diagnosed with PV 5 years ago. I take 1500mg Hydrea daily. Occasionally I suffer with bouts of extreme hand cramping. My fingers curl up and it looks like an alien trying to escape my forearm. I find that staying hydrated and drinking a high potassium sports drink like Body Armor helps
I have had Dupytrons since my 20s and it is hereditary, as my father had it. I was diagnosed with ET in 2016 and would never have thought of a link. I do get hand cramps, which I think have got worse with the HU? Dupytrons was known as the 'Cobblers disease' as it can be brought on my continual and excessive trauma - or chronic alcoholism!! Neither in my case. Many people get it and there are many new treatments, that can be given by the GP as opposed to the surgery that I had 50 odd years ago.
I suspect that we are all part of a statistical anomolie rather than a causal link - but who knows?
Interesting though.
Stephen
I had DC, with my finger operated on over 20 years ago. It's been fine since although I do now have a hard pea sized lump in the palm of the same hand. Diagnosed with PV in 2005, transitioned to MF 2017, transplant 2019. Interesting if there is a link, not heard this before.
Thanks. Good luck with the handling of the MF....I see this link as a coincidence at this stage.