MPN New Zealand Information and Support and MPN Australia & NZ Myeloproliferative Neoplasm Support Community - Facebook Groups

[Wentry]

Hi everyone,

For those of you on here that are are in Australia and New Zealand I just wanted to let you know that are now two great Facebook Groups for people with MPNs, survivors of MPNs, and their families and carers. They are closed groups so only members can see posts. Some of you may already know about the combined Australia and NZ one, but a new one was set up for people in New Zealand in 2018, (update 1/9/20 - the group has changed to be under the umbrella of LBC NZ and is now called LBC MPN Patients).

The links are -

Australia & NZ - facebook.com/groups/mpnaust...

NZ - facebook.com/groups/2427779...

I don't think there are many of us on here from NZ but thought I'd share as it's great to finally have something that is for NZ, so that we can have meet ups and support each other, and that will also hopefully help us with trying to get access to drugs that are available in other countries but not yet available in NZ. There was an MPN gathering in March 2018 in Wellington where Dr Ruben Mesa gave a talk, so onward and upward!

Happy browsing!

Wendy

[Mazcd Partner MPNVoice]

HI Wendy, thank you for sharing these details, best wishes, Maz

[Wentry in reply to Mazcd]

Hi Maz,

I’ve just updated the original post as someone found it and commented yesterday that the link didn’t work, I realised as the group moved recently it needed updating 😁

I originally posted as for my first 6 months on HealthUnlocked I didn’t know about the two MPN groups down under. I found out about them two weeks after Ruben Mesa gave his talk, I was gutted I’d missed it, it was in my home town in NZ and I could have gone and also met someone else with an MPN, at the time I didn’t know anyone else here with an MPN. I didn’t want anyone else to miss out so posted a couple of years ago 😁

Best wishes

Wendy