Pegasus anyone
What’s people take on Pegasus : Pegasus anyone - MPN Voice
What’s people take on Pegasus
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It's worked for me. After 9 months, my blood counts were under control and the specialist began to space out the injections. I had many side effects but they were manageable. I started Pegasys at 69 years after hydroxyurea toxicity. I frankly do not understand the reluctance of some to prescribe Pegasys to old people like me. I look forward to the arrival of Besremi in the US market.
I have started it and have done 4 injections so far. The jury is out but will be seeing my consultant this week and see what my labs are
Graham
I've been on Peg since last November after 13 years on Hydrea (because the HU wasn't working anymore for my ET) - it's worked really well for me lowering my platelets well - I have felt side effects and still do particularly the day or so after injecting and I am better on the lower 45ml dose as when I had higher dose it really played me up - having said that I am very glad to use the treatment and keep safe so just go with any effects as they will balance out as time goes by. I know many take Peg with no side effects at all.
Hi, I’m 5 doses in and not sure what to make of it yet. I feel lucky to be getting it on the nhs so trying to roll with it.
3 doses at 45mcg per fortnight, no change in platelets, so now on 90 mcg per fortnight (there was an option to go 45 weekly, but I was reluctant on that as the bruise lasts 3 weeks at least each time, and don’t fancy side effects weekly , and felt like a huge waste as being given 135mcg syringes). But... wondering if I’m getting some side effects now on higher dose, a few days after taking it I’m feeling a bit rough (bearable but requires a lie down and paracetamol, headache and not functioning well for a while).
Would be interested to hear others experience of it too.
Hoping it will get easier, and that overall I will feel a bit better in general and it will be worth it.