What’s people take on Pegasus

[Hahag]

Pegasus anyone

[charl17]

It's worked for me. After 9 months, my blood counts were under control and the specialist began to space out the injections. I had many side effects but they were manageable. I started Pegasys at 69 years after hydroxyurea toxicity. I frankly do not understand the reluctance of some to prescribe Pegasys to old people like me. I look forward to the arrival of Besremi in the US market.

[Graham7694]

I have started it and have done 4 injections so far. The jury is out but will be seeing my consultant this week and see what my labs are

Graham

[Helpatlast]

I've been on Peg since last November after 13 years on Hydrea (because the HU wasn't working anymore for my ET) - it's worked really well for me lowering my platelets well - I have felt side effects and still do particularly the day or so after injecting and I am better on the lower 45ml dose as when I had higher dose it really played me up - having said that I am very glad to use the treatment and keep safe so just go with any effects as they will balance out as time goes by. I know many take Peg with no side effects at all.

[Peak-Moves]

Hi, I’m 5 doses in and not sure what to make of it yet. I feel lucky to be getting it on the nhs so trying to roll with it.

3 doses at 45mcg per fortnight, no change in platelets, so now on 90 mcg per fortnight (there was an option to go 45 weekly, but I was reluctant on that as the bruise lasts 3 weeks at least each time, and don’t fancy side effects weekly , and felt like a huge waste as being given 135mcg syringes). But... wondering if I’m getting some side effects now on higher dose, a few days after taking it I’m feeling a bit rough (bearable but requires a lie down and paracetamol, headache and not functioning well for a while).

Would be interested to hear others experience of it too.

Hoping it will get easier, and that overall I will feel a bit better in general and it will be worth it.