Many thanks to all of you who responded to my earlier post, which encouraged me to start looking further for info on fatigue in MPN patients. I came upon this paper from our American friend Prof. Ruben Mesa bmccancer.biomedcentral.com...
which is a large scale survey of MPN patients in the USA, which includes an analysis of the symptom load, which I have tried to attach as a photo. Interesting (but not surprising) that 80% of MF, 73% of PV and 71% of ET patients complained of fatigue over the preceding 12 months. So, given that we cannot all be wrong, fatigue really is the number 1 problem that most of us suffer. The only question now is how do we get that message out to the wider world (including medics) in an effective manner?
Little by little, we will get there