First appointment

[john0084]

This afternoon I'm seeing a Macmillan haematology nurse specialist. My first appointment with her since being diagnosed with prv in July. I don't know what to expect. Is it usual to be transferred from a consultant to her?

[mhos61]

It was for me!

I saw the Consultant haematologist for the initial diagnosis. After that I was passed onto the Clinical Nurse Specialist, and have seen her every visit for the last two years.

[Bridie123]

The Macmillan nurses are brilliant. They will reassure you that your cancer is Not like the cancers we hear and know about . They can and will give support in written information or put you on to people who can help. Listen to your worries and concerns no matter how trivial.

While I was being diagnosed, my then haemotoligist tied me in knots and I got in a right state! I contacted Macmillan cancer support at my hospital and the nurse who saw me literally saved my mental bacon. I can't praise her enough, she got me a new haemotoligist and set me back on my feet. 🤗 Carole

[john0084 in reply to Bridie123]

Unfortunately I got my wire's crossed and didn't see a macmillan nurse but one of the haematology staff. Still my bloods were good but back in 3 weeks for review of another blood test.