Hydroxycafbamide: Hi my name is Sandra I was... - MPN Voice

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Hydroxycafbamide

Smoothy profile image
8 Replies

Hi my name is Sandra I was diagnosed with essential thrombocytopenia in January 2018 Iam taking hydroxycarbamide and feeling really tired does any one feel the same ? Thanks

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Smoothy
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8 Replies
Pippa63 profile image
Pippa63

Hi welcome to this friendly forum . I have ET and am on hydroxy too and suffer fatigue . I find walking and gentle exercise helps and resting in between . Drink plenty of water and keep hydrated . I'm sure others will have good advice for you too ., you are not alone as it affects many of us with this condition but it's early days for you and things can improve.

Best wishes. Pippa

Angeltwin profile image
Angeltwin in reply to Pippa63

Thank you pippa

ksos profile image
ksos

Hi and welcome. I also have ET and the biggest problem I face with it is fatigue. As you read through the posts here, you'll find it's quite common -- despite some doctors saying it isn't. I've learned so much here, and all of it has helped. Pippa is right -- gentle exercise, water, rest when you need it, and most of all, know you're not alone.

Kim

dgk70 profile image
dgk70

Hi Sandra, I to have ET I was diagnosed may 2017 , I am 48 and I’m on 75 mg aspirin and 2 x 500mg hydroxycarbamide a day, I to feel tired all the time the haematologist told me it’s the hydroxycarbamide that’s making me tired, so I guess we just have to live with it 😩

Angeltwin profile image
Angeltwin in reply to dgk70

Thanks dhk70 for sharing this with me it’s good to know that I am not on my own I have dropped my hours in work so hoping this will help thank you & best wishes

Johnsb profile image
Johnsb

Hi Sandra, the fatigue comes and goes of its own accord. I have no idea what pattern their is to mine. I do know if I go "overboard"on activity the next day can be sure to be tired more so than usual. Walking and hydration seem to be the key and for me no sugar and limited high glycemic foods. Good luck and post attention to how you feel based on what you did and ate. A diary helps with that. I have pv jak2+ and am on hydroxy plus vennesections.

Best wishes

Angeltwin profile image
Angeltwin

Thank you with this information wich I will take on board it makes a lot of sence in what your saying love this group best wishes .

Mardihel profile image
Mardihel

Hi I was diagnosed 5 weeks since with ET I have felt fatigue with the tablets, but do have to push myself at times to play tennis, usually in bed by 10pm, sleep like a log. Hope you feel better soon

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