I was feeling bad for some time, went for blood tests, they came back and I was told my blood was a little thick, nothing else, no treatment...
When I asked for my results some years later, this is what I found...
I was not happy, all that suffering and me being at risk for a long time...
PV JAK 2+
I had a similar thing happen checked my records from two years prior and results were raised and would’ve definitely been flagged by a haematologist.
Wow, how can they just dismiss that? A similar thing happened to me, I managed to get hold of my blood results taken three years before my diagnosis and they showed raised platelets. I was not informed at the time. In the meantime I had a blood clot, which led to the MPN diagnosis.
Same thing. My GP told me I had " iffy bloods " since 2007 although I am sure I had MPN much much longer than that. Itching going back as far as 2002. Loads of tests for allergys, skin sample taken, creams to put on, stuff for the bath, all to no avail. I was finally diagnosed 2011.
I had itching in 2004, only diagnosed 10 years later. My numbers at that point were...
WBC hb HCT Platelets Neuts
12.70 18.20 0.614 1143 9.59
No wonder that I felt bad..
Absolutely appalling! You and others on here were put at unnecessary risk. For what reason?
UPDATE: First Haematology Appointment - What Happens?
High ferritin post transplant
What time to take hydroxycarbamide
What Next?
Worried about drop in platelet count
