How wonderful to find this community!
I'm 55, in good health but recently started to feel fatigued frequently, have tingling in my feet, and lightheadedness. My doctor discovered that my platelets were 500 the last time they were checked so retested them and now I'm at 800. I'm also JAK 2 positive. So I'm on daily aspirin.
When did you have to start on hydroxy? My doctor says it is "evil" - and I won't go on it till my platelets are 1.5million. Does that seem right?
I'm so glad to hear that you're living normal lives. My dad died of bone marrow cancer when he was 60, so this kind of freaked me out. (He had Waldenstroms macroglobulinemia).
Hope to hear from you!