Rewolf

[Rewolf]

I'm new diagnosed in January 2017

[christiev]

Hello

Diagnosed with what?

How are you feeling?

[Rewolf in reply to christiev]

Polsythemia Vera was completely in dark about diagnosis as in hospital 3 days without being told why the treatment was necessary!

[christiev in reply to Rewolf]

Well done for finding this forum! Hang on in there - Its a scary time but keep breathing and keep in touch with MPN Voice and all it has to offer - you'll find lots of support and info here. Good luck and try not to worry.

[mhos61]

Hi Rewolf and welcome to the forum. Which MPN have you been diagnosed with?

Mary x

[Rewolf in reply to mhos61]

Polysythemia Vera

[Aime]

Hi Rewolf, you've come to the best place to get support as there are lovely people on this forum who don't know you but will give up their time to offer understanding and empathy because they know what you are going through. The MPN Voice website is excellent for trustworthy information and Maz our editor can provide you with a buddy or medical info straight from the medics at Guys.

I was diagnosed with Polycythaemia in 2012 and for me it was a hugely anxious time but this forum helped me understand and get some control over my disease instead of it controlling me.

Every best wish, keep in touch, kindest regards Aime x😺

[Mazcd Partner MPNVoice]

hello Rewolf, welcome to our forum, it can be very scary and confusing when you are first diagnosed, but you are in the right place for help and support. I would advise you to read as much as you can on our website mpnvoice.org.uk - I can also send you details about having a buddy, a buddy is someone who has the same MPN as you and will have had it for more than 2 years so will have come to terms with it and the impact that it has on daily life, so if you feel you would like to have someone to talk to then please email me at [e-mail]

Best wishes, Maz

[harleydavidson]

Hi Rewolf. Welcome to the family. I was diagnosed with PV 14 years ago. We are all here to help. Take care. Mel x