I could of swore I posted something about taking Hydroxea but have no replies and cannot find it? So forgive me if its a double post. Hemo Dr insists I start taking this medicine, I am very scared especially since I do not like being nauseated, am a caregiver to my 93 yr old mom and work full time. My platelets were 812 two weeks ago, BMB showed only ET, also blood work showed Jak2+. He insists it safe very litte side effects, not what I've heard???. OK so the only risk factor I have is over 60, low BP, had AFIB once but due to operation and inflammation. Have been getting blurred vision in my eye, small amount of brusing on my hand once in a great while and I had night sweats once over the summer. So please help, he gave me nausea meds also but I just can't stand being nauseated and can't function. OK so side effects??? Thinning hair I don't have much to begin with, dry skin my skin is so dry it peels. what about getting hair dye please tell me I can still do that. Also very few people with this so could use all the support I can get. Also so far away from most of you, live in the US. take in the morning, night???. anyone just could not take the effects and had to do something else?. How about second opinions with an MPN specialist? My hemo is nice, smiles all the time, talks but I live near a very famous hospital, Hopkins and they have an MPN specialists who speaks on patient power. OK pls help?????
Also just an FYI, but MD Anderson in Texas is having a conference on MPN on the 24th, it free and they will have lots of experts there and you can join in on-line.
Thanks everyone, as they say I think the treatment is worse then the disease. :).