My husband died in September of pulmonary hypertension and acute anemia. Did you know too many platelets can cause PH. We didn't our hemotologist didnt. Even though I know some MPD 101 the hemotologist said it would be ok in th 600-700. Stupid me didn't insist. ..He was on a lot of HU since 2006 Did you know you can get skin cancers frumpy being on HU for a long time? The hemotologist didn't. He had major hair loss all over his body, I wonder why? He never had a bone marrow check. At first his rest came back Jak2 negative. Our hemotologist then said that he defiantly had PV. But after a while my husband wanted to have 1 dr instead of a team. We switched to the hemotologist. When he got so sick with the breathing out cardiologist said it was because of the MPD. We changed right away to a wonderful hemotologist who took test that showed he was positive for Jak2 and his PV had changed toET. Every portal in his body was clogged with. small clots. He almost bled out from a pic- line? And guess what.....his bone marrow was spent. Do your research.... change drs. Speak up and be confident of what you know. Our dr. Maybe a good oncologist but if there was a way to keep him from seeing MPD patients I would try. Should have known about y'all sooner. Thanks for listening...
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