Has anyone with PRV been diagnosed with erythema nodosum or anything similar

[liarose]

[Geoff_mpnfamily]

Ouch!! Oh Wow... Ouch!!!

I just look it up online, I can't imagine what your going through. ^_^

I hadn't ever experienced that my self, but I do hope you get through this fast...

[dawnybird]

Hi liarose,

I was in admitted to hospital around six years ago with erythema nodusum. They kept me in for about five or six days doing different tests, and they diagnosed me with Sarcoidosis. At that point I hadn't been diagnosed with ET, although I'm pretty sure I must have had it back then as one of my consultants mentioned my high platelets and asked what was being done about them. The lumps from the erythema nodusum (on my shins), along with swollen feet, ankles and other symptoms were pretty uncomfortable.

What has caused your erythema nodusum? x

[liarose in reply to dawnybird]

My GP thinks it is caused by hydroxycarbamide that I take for my PV

[Lab-Rat]

I had vasculitis/erythema nodosum caused by Hydrea hydroxycarbamide I was taking for ET jak+. I had to stop taking Hydrea.