Hi, I'm new on here, though not to mpd - was diagnosed in 1988. PRV Jak2+. I seem to have lost contact with mpd forums , anyone know dates?

[revfee]

[Mazcd Partner MPNVoice]

Hi Revfee, welcome to the forum. Sorry but there are no more forums booked for this year, we are hoping to hold forums in new locations and again in London and Cambridge next year, I will post details on our website and on this forum. Regards, Maz.

[Geoff_mpnfamily in reply to Mazcd]

Hi Mazcd, Does that meen that Colchester isn't in the plan now!? (For next year?)

[Mazcd Partner MPNVoice in reply to Geoff_mpnfamily]

Hi Infuseme, Colchester will hopefully go ahead next year, maybe in the spring. Maz

[Geoff_mpnfamily in reply to Mazcd]

Thanks Maz, that would b awsome.

[LouisePRV Volunteer]

Hi everyone.

I live in Cumbria and am currently awaiting feedback from Tim Somervaille at The Christie in Manchester, who is seeing Claire Harrison at St Thomas's in London sometime in October, so fingers crossed for a north west forum!

Louise

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Forgive me as this is not actually an answer to your enquiry but just a message to say that I have gained hope and inspiration from knowing that you were diagnosed in 1988. There are many conflicting prognoses for our illnesses but you show that we can go on for a long time. Thank you for this new inspiration.

[revfee]

When (and where) I was diagnosed in 1988, very little seemed to be known about the course of the disease as it applied to young people (I was 29 at diagnosis). I was told 8 - 10 years and although I had some of the associated problems (heart attacks, DVT) I have been stable now for a long time. On hydroxycarbamide, aspirin etc, but basically just get on with my life nowadays. A few years ago Claire Harrison said I have a near normal life expectancy. I aim to reach 100!

[Headinthesand in reply to revfee]

This is very reassuring for me.my husband diagnosed 3 months ago,and that is the thing he is worried about. Keep healthy