Cephaly

[1518]

Does anyone have a cephaly machine that they no longer use that I could buy? Thanks

[Monroecuts]

Yes, I have one.

[1518 in reply to Monroecuts]

Hi, could you let me know how much you would like for it and if it is in working order more importantly!Thanks

[Monroecuts in reply to 1518]

So sorry not to get back to you but I didn’t see your response. Yes it is fully functional and has the original case, charger etc It will come with one unopened electrode. £225 including P&P within the uk. Cheers

[1518 in reply to Monroecuts]

Thanks for this but I think I'll contact Cephaly after getting some info from Francesca21, if it doesn't have any affect at least I might get some money back. Thanks again

[Francesca21]

Do u know that if u buy one from cefaly direct they refund u £280 of the 363 if you arnt impressed after 60 days? The electrodes are expensive about £20 ish

[1518 in reply to Francesca21]

Thanks that’s really helpful, will check them out

[Francesca21 in reply to 1518]

If you google and phone them (its in Birmingham area) the staff are so helpful and explain exactly why it isnt 100% refund. Some of that 363 was for electrodes which obv id used. They even extended my trial period for 30 days too. My pain is permanent chronic and this is to prevent or abort one starting. It did help me in that all the stimulation of trigeminal nerve managed to rid me of a lot of nausea. But ultimately I wasnt able to carry on using it as was about to start courses of botox and cant be used at same time. So back it went .

[1518 in reply to Francesca21]

Thanks again really helpful, will definitely contact them

[ChickenKiev]

Frankly, at that price I’d expect a 100% refund.

[ChickenKiev]

I’ve not heard of these before. Does anyone have any links to peer reviewed, published research about their efficacy?

[Francesca21 in reply to ChickenKiev]

Reviews are on Cefaly website I think. Staff are very very helpful.

[ChickenKiev in reply to Francesca21]

Thanks. The research doesn’t seem particularly strong. All of the research projects on efficacy have fewer than 40 participants with approx 30% reporting a reduction in migraine frequency/medication use. The only large study (2000) looked at tolerance and reported side-effects rather than efficacy.

I’m afraid that I’d need more of a correlation between use and benefit before splashing out £300+.

[Francesca21]

Yes I get that. Ive been so so desperate tho. 18 months of permanent chronic now. Prevention meds suddenly wernt cutting the mustard after ten years. Last December I was starting to envy terminally ill patients as at least an end in sight. Hopeful of hormone treatment soon. I simply cannot understand why nothing is touching this pain.

[ChickenKiev in reply to Francesca21]

That sounds tough. Chronic pain is so debilitating. You have my sympathy - it's not much but it's all I can offer.

[Wales99 in reply to Francesca21]

Bless you that must be so tough. I too suffer from chronic daily migraines. Currently trying HRT to see if that works. Worse thing is that they come on after exercise so I haven’t been able to exercise properly for six years. I’ve put on a stone in weight. I hope you find some relief soon.

[Francesca21 in reply to Wales99]

Swimming dosnt trigger my pain but walking briskly raises my score from it’s permanent 5-6 to 8. Goes down afterwards. Bizarre but i feel sure the bloods struggling to get throu😒my brain tremors on a morning too as i wake. Never heard of anyone else with that symptom.

[Wales99 in reply to Francesca21]

Yes I know what you mean about feeling like the blood is struggling to get through. Also I do get a weird feeling in my head that feels like my brain has been shaken. Brain tremor describes it well!

[Francesca21]

Now know hormone treatment unlikely to help me as 12 years post menopausal. Am now thinking mis diagnosis and neuro had said not hemicrania continua but i still think it’s possible. Have asked to try indomethacin as if it works it confirms hemicrania continua. Got to be worth a shot. Very difficult to diagnose as presents similarly to migraine. Thanku for you kind words/thoughts. Only fellow sufferers can begin to know. My analogy is - its like horrendous nappy rash of the brain and its screaming for help- may as well be wiping with urine soaked flannels n wondering why its not improving. I need sudocrem for brains😝