cluster headaches

[mollymalone2]

I have been suffering with cluster headaches for 16 yrs,,pizotiphen is the tablet I take,,only finished a cycle in 12TH December n now they r back again,the pain is excrushiating at my wits end now with them.I'm 66 now n find them harder to cope with .

[monster15]

Th y I will relly like to talk to some like you my number is 3162011211

[clusterhead]

I too have suffered for 12 years now and totally understand your desperation. I take Lithium daily as a preventative, which really helps. Mine became chronic, daily, so I was desperately seeking some help. They still breakthrough every 18 months or so but a month long course of steroids usually blocks them while the Lithium has time to kick in. Oxygen through a re-breathable mask - the one with a bag attached-is invaluable at the start of an attack-I wonder if you have tried any of these?

Also, I find Magnesium helps-apparently we sufferers lack magnesium, so it's worth a try. I hope I have been some help, I know how you must feel but hopefully these remedies will work for you x

[babs1234]

I don't think none sufferers understand how debilitating migraines are Have you tried the tryptilyne.? Imigran are the ones that for me.

[Diamond_girl_xx]

I personally have tried everything just about to start on the sumitriptan and oxygen so fingers crossed, pitzotifen made mine alot worse though but im guessing everyone is different x

[snfg]

Hi, I'm so sorry to hear about your attacks...these things are just cruel, I hate them...I was on pizotiphen for about 18 months...it did work for a while, then I started getting weird visual disturbances and I slept a lot...I moved then onto beta blockers, propanalol which whilst they didn't stop the attacks, reduced their severity, frequency and length of attack...and I have a fantastic heart beat.....I really hope yours get better, take care

[snfg in reply to snfg]

Sorry..just thought I would mention that the visual disturbances I mentioned were not the aura I normally get, but something different altogether..