Gpants for migraine

[LRLR]

My neurologist has prescribed me Gpants in tablet form after I have trialed 4 different horrible preventive medications. I was happy to finally be at the stage to qualify for these.

Bad news is- he tells me it’s unlikely my GPs will pay for me to have them as they are so expensive -£200/£300 month. Has anyone else experienced this problem? I am very upset and shocked at this-qualifying for a much needed medicine yet being refused it.

Has anyone tried the Gpants, what are side effects like and success?

many thanks

[Chleo11]

Hello. Gpants have never been paid for by the NHS. It is approved by NICE but that's it. This medication acts on the CGRP, which in turn are just one part of the migraine process. It works differently for each of us. I hope you find a solution.

[LRLR in reply to Chleo11]

Thank you for this. What is the CGRP?

[Pingez]

Hello,I have tried both Remegepant and currently Atogepant, privately at first. For me, Atogepant works better, especially when teamed with a CGRP injection ( for me this is currently Aimovig).

Because I have suffered so badly in the past, especially with sickness, when my weight dropped below what could be considered healthy I have managed to get Remegepant prescribed by my gp surgery in the past. I'm hoping to change this to Atogepant in the near future. I managed this after intervention by the head pharmacy practitioner who strongly recommended it.

However I also have regular contact with the National Migraine Centre, who prescribe the injections privately. It is because of this regular contact that they are able to circumvent the process and allow me free access to the gepants.

The two drugs combined help enormously with levels of sickness and pain, but sadly I still get regular migraines ( they don't seem so good at reducing frequency).

I hope hou can get something sorted.

The CGRP injections are available through a neurologist. I'm surprised your gp isn't referring you.

[LRLR in reply to Pingez]

Thank you for this. I’m glad this has managed your symptoms but sorry to hear it hasn’t stopped the frequency that’s not good.

I am under a neurologist however he didn’t explain i could have injections as well as gpants-just that I qualified for Botox or gpants, and gpants tablets would be better. He has wrote a prescription to my GP but said he knows the GP wont pay for it.

He has referred me to a headache clinic who will pay for it but this is over a years waiting time plus very far from where I live, of course willing to travel to get anything that will help.