Seeing infectious diseases consultant this morning.

[SarahLion]

I have had symptoms for decades. It feels to me like more minor recurring meningitis. Five years ago at this Infectious diseases clinic, They diagnosed me with CFS/ME. It was the only thing they had left.

Five years ago I didn’t know about recurring meningitis. Know that I do I am going to ask them whether it could be recurring meningitis. Knowing my usual bad luck I will probably meet someone who knows nothing about meningitis and insist that it can’t reoccur. What kind of information can I show them on my phone That will help them to actually take me seriously?

[IRHONDA]

Its called Mollarets Sydrome I have it, ive had 4 bad bouts in hospital 7/10 days each time, then since getting it ive suffered heahaches which can last up to 6 weeks non stop...but in February this year had a mini bout it was so bad still getting over it now, took ten days for the head to get a bit better the pain was like full blown nearly, I stayed at home by myself the whole time I don't know where they time went to tell u the truth, I have 2 dogs and I just didn't have anywhere to send them so I stayed home and suffered by myself was the worst but I got thru thank god … let us know how u go and goodluck x