Knackered

[MattyPryor]

Is it right that I'm so tired after doing anything? I've lost a bit of hearing in my left ear, my vision has returned back to normal after having myopia and generally feeling yuck.

[Valorrian]

Yes, it will take time to get better. I’m 2.5 years out from bacterial meningitis and I still get tired. I’m much better than at the release from the hospital but I do not have the energy I use to have before the meningitis.

Are you struggling to understand speech with your hearing loss? I know hearing loss in itself is difficult to adjust to. You may not realize that you are more focused on people and lip reading more to understand. It takes a toll. Meningitis took my hearing and it’s a hard transition. Did the say if the hearing loss is permanent? Perhaps a hearing aid would help?

[MattyPryor in reply to Valorrian]

Thank you for replying. I'm a nurse and often in theatres we have to wear face masks. I would definitely struggle with speech and hearing others. At the moment I'm asking people to repeat themselves. I go to see an ENT doctor in February. My neurologist has said that the hearing will most probably be damaged permanently but vision would return which it has. I go back to work at the end of January, but MY MEMORY is shocking. My skills are still intact and when I try to say things it takes a while for the words to come out.

[Barbaustralia]

How long did your vision problems last ?

[Barbaustralia in reply to Barbaustralia]

My hearing kind of better but any light brighter horrid

[MattyPryor in reply to Barbaustralia]

Well...I got re admitted on Jan 19th and am still in hospital. Got moved to the Royal in Liverpool city centre yesterday having spent two weeks in Whiston. LP and all scans have come back okay. Due to habe another LP tomorrow and a detailed MRI to detect air bubbles in the brain. I'm sick and tired of being a patient. And IV paracetamol and codiene are helping with my head ache. God knows how long it's going ro take me to get over this. My left ear is really bad at the moment but the photophobia is improving.

[Barbaustralia in reply to MattyPryor]

Sounds awful

I hope you start to feel better

How does your photophobia appear to you as everyone different

My hearing improves though screaming children hard on ears

[IRHONDA]

yep im sure ive lost some of my hearing as well.... try and stay well keep your body healthy as much as you can ... and don't over do but yes you can get tired for no reason at all, its just part of the journey, and the pressure in the top of the head will disappear eventually , take care