I am Amanda, from Nanaimo Canada, please forgive my bad writing since English is not my first language.
My husband has been in ICU 20 days, he was being diagnosed meningitis on Dec 10, after that day, he opened his eyes here there but his hands and feet had started losing responding after that. Around Dec17, he's fully rely on life support machine ( not breathing by himself), he still open eyes sometimes and look around. So far, Doctors still do not know if it is viral or bacteria but all tests for bacteria are negative.
From this week, doctors came to me couple times, telling me that they have negative feeling on my husband since he has not been having any improvement ( such as awake or response on hands or foots). The speech broke my heart. I have been doing researches online and learned that everyone has different pact to recover / awake. From this website and many other sites, I noticed some people went in coma more than a month or longer. I truly do not want to give up, what can I do.....please......
Will my husband get better chance if he can get treatment directly from specialist ? The reason I am asking because the hospital changes doctors every week in ICU and each of them has different professional, however, it does not sound like any of they had experience with meningitis. Even though they keep telling me they have keep in contacting with specialists within Canada to look for different treatment but I am just wondering, will my husband get better chance if the specialist could see him directly instead of discussion via the phone only.
I know, nobody can give me a 100% guarantee on what is going to happen. I just ... I truly do not want to give up. Am I too selfish? Dr said, when family do not want to give up, most because family member feel better but we are not considered patient's interest. No..No....I just think it is too early to go that.......God...help me