Loneliness

[AEC1]

I feel so alone with this.



[dunnellon]

So sorry you feel alone. Hopefully you'll get more answers from the next MRI and be on your way to treatment. Keep updating on this forum. Lots of support and experience here.

[AEC1 in reply to dunnellon]

Thank you so much for your reply. I was having a bad day with everything. Yes, hopefully the next scan will help move things forward.

[Piquedame927]

please try to hang in. There are lots of us that are dealing with these issues, so please know that you have a support group! Everything will be fine…

[AEC1 in reply to Piquedame927]

Thank you so much. That is reassuring.

[Gigiwith7]

I am in the US. I have randomly met two women, by chance, that have had craniotomies. We now talk and have become friends. There are more of us out there than you know. I read 9 books about people that have had meningiomas removed. That also helped me to not feel so alone. I had mine removed 3-23-21. I have recovered very well. It is a lot to deal with. Stay strong, stay positive. God bless.

[AEC1 in reply to Gigiwith7]

I really appreciate your message, thank you. I'm pleased to know your recovery from the removal has been so positive.

[Quiltingrammy]

it’s been a couple of weeks, I hope you have had some sense of peace and love. My first month I was really depressed. I worried and would just cry, sometimes at the silliest things. I found a psychiatric nurse practitioner who has been a great help to sort out what I can put aside to live. I was worried how my family would function…she told me we have no idea how long we have. I told a few close friends, after I wrapped my head around the diagnosis. That helped. Reach out to those in your circle. I found the couple of friends really helped as my family were too close and worried too much. As others have said, we are here.

[dunnellon]

Just a note to let you know you're being thought of and sending well wishes your way.

[jasonoliv34]

Hi

I can relate to this. Before my diagnosis I had no prior knowledge of the disease, and wanted to reach out to a support network to help me and my family through it, at the time I could not find any such resource.

However, subsequently I know lots of people close to me going though this and a far wider network of fellow sufferers.

Please review this, thebraintumourcharity.org/g..., for networks who can help support you and this, amazon.co.uk/Fightback-Brai..., my book which is the account of my family's journey.

Be Blessed.

Cheeers, Jay

[Trvlr]

I can relate! I am glad that you are here.