AutismMum

[Borisdo]

Hi, my 29 year old autistic son has recently been transitioning into his house with his care team and thankfully it is going well.

The house is shared ownership under HOLD scheme and I manage his money, rent, mortgage,bills and now daily expenditure I oversee too for daily living expenses, petrol, food and out and about.

My next thing to sort out is who can manage this when I am gone or too old to do this? Sadly no other family. Can a soliciitor deal with this or management company of some sort? Has any one any experience of this?

Many thanks!

[parasiticworm]

social services would likely take the deputyship on and manage his finances. They do this with me.

[Borisdo in reply to parasiticworm]

Hi Parasitic worm! that made me laugh btw! Thanks for your reply, I didn't know SS would take on deputyship?! Thats very good to know, I may contact them to discuss, thanks again, Diana

[Bluey203]

Hi Borisdo, this is exactly my concern for the future too, my son is 21 living at home and would require 24/7 support with everything. I'm afraid I don't have answers, but will be interested to see if others do, it is a very supportive forum with many knowledgeable members. 🤞

[Borisdo in reply to Bluey203]

Hi, thanks for your reply. As you can probably see I had another reply suggesting SS woud probably take on my deputyship, I will enquire with them about this and let you know! Diana

[anonymous-28]

Good luck with the transitioning. I will be in the same position too ,so interested in any suggestions.

[FragileXmum]

We are in the same boat with our two LD sons, who are now in their 30s. We have found it very difficult to find out about viable options for safeguarding their future care as we don't have any younger family members.

[jollyfarmer]

You can set up a trust to deal with matters after you can't anymore.

[DrSarahmac]

hi. I have heard other people on here complaining about SS management of our kids finances. We’ve set up a trust for inheritance and they will also monitor benefits housing etc and have a letter of wishes about what the trust can be spent on. I can’t be and wouldn’t put this on anyone else so tge solicitors will do this (for a fee). Mencap also have a trust management company and run regular online seminars on planning for finances and care after we’re gone. That’s where I started. I learned a lot.

[FoodBankKnitter in reply to DrSarahmac]

I’d like to find out about the mencap seminars, I’ll stick it on my to-do list, thanks

[DrSarahmac in reply to FoodBankKnitter]

They’re extremely good.

[Chocolate-heals-all]

Mencap Trust Company will happily manage a trust on behalf of a person who has a learning disability. It means that the money isn’t considered under means testing. So that’s helpful. Also the people from Mencap Trust Company make it their business to keep up with trust beneficiaries to check whether they’re ok and whether they can benefit in any way from the funds in trust.

My son has some money in trust with Mencap Trust Company. My intention was that the money from the trust would pay for an independent professional to visit him weekly to monitor the care and support he gets via social services. He is also giving lasting power of attorney to his sister and brother-in-law. In my experience, you can’t give trust to any person or organisation in entirety, because organisations and people change. So some external monitoring is always helpful even in a good set-up.

Also - Andy Riddle is a fellow volunteer with whom I worked on a local project ten years ago. He is head of a company that do deputyship for people who don’t have family or friends who can/ will do it. You could check them out.

deputyship.co.uk/