Access to my 28 year old sons care plan

[Camscot]

I have been informed that I must formally request the service provider to view my sons care plan, is this correct we haven’t even been involved in his care plan?

[SpeedyH]

Did the provider say this to you, or adult social care? Perhaps get in touch with social care at the council and tell them that you have not been involved in your son's care planning and you would like a new review with you being involved. Tell them you would like copies of his care plan. However, you do not have an automatic right to documentation about an adult unless you have power of attorney/Deputyship for them. Your son can request that you have copies if he has capacity to do so.

[Camscot in reply to SpeedyH]

Thank you it was his care provider who said so, but I will contact his social worker to request such today. I don’t understand why the care provider can make a care plan about my son, they know nothing about him apart from probably copying the previous care plan from the previous provider, when the parents obviously know their son much better.

[49Twister in reply to Camscot]

I’ve recently had the same issue, so your not alone. Always been involved in his care plan in the 6 years he’s been in supported living. Not sure what purpose they serve though as it’s on rare occasions that anyone reads them!! Just became aware that a complete stranger had recently done his care plan, basically copying info from previous plan. Eventually after many phone calls to service manager got a copy sent out, and it wasn’t worth the paper it was written on. Even basic info was all wrong, his date of birth, National Insurance no, absolutely disgraceful. Eventually had a meeting and sorted it but got zero confidence in the company been struggling with them for some time. The social worker is aware. Your right though, they actually don’t listen to parents who know their sons/ daughters so well. During a chat with a support worker recently, (he used to be in the managerial role previously) I asked if he’d read my son’s assessment that was done in 2014 by a psychologist. This assessed my son as having a severe learning disability, which I know very well as he lived with me for 41 years, but the support worker in question thinks my son has a mild learning disability!!!!! This is what we’re up against 🥺

[Camscot in reply to 49Twister]

Hi 49Twister, mirrors our experience exactly, we got rid of the last service provider and the new one is even worse, won’t even let him go out in his garden! Looking to get direct payments for my son and will hire and train the new teamourselves. The current staff don’t even know there is a care plan, it only includes the daytime for him nothing about night time and routines etc, no staff have been trained and signed of on the care plan either, absolutely scandalous!

[49Twister in reply to Camscot]

It really is shocking, everything is just a constant battle, has been all his life he’s 47 and I’m 72 !!!We just carry on hoping things will get better but never happens. I just don’t get it, why do they make it seem so difficult, it’s really simple. What’s that saying Carry on and Keep Calm😊 Take care x

[Camscot in reply to 49Twister]

Aaaaw bless you, that is so sad to hear about. It really is ridiculous in this day and age when we still have to fight tooth and nail just to get our children in a safe and secure placement of their own, surrounded by a loving and caring support team and the most saddest of all is no one ever listens to the parents who know their children better than any one else. Please keep in touch, if I can help you out in anyway please let me know, even if it’s just for a chat and a catch up. Stay safe and strong my friend.

[49Twister in reply to Camscot]

Thankyou, he’s only been in supported living for the last 6 years, lived with me right until then and you want to do the right thing and get them settled before your no longer here. It’s been the hardest six years of my life, and like you have thought about changing the support company but the care sector is in such dire straights it doesn’t feel the right time.

[Camscot in reply to 49Twister]

My boy has been in his own house for the past two years, prior to that abused in a previous unit, police investigated but no one would obviously stand up and say who it was! He is much happier in his own house now but has been incarcerated for the past five months with both care providers refusing to take him out and now he is becoming reluctant to even go out for a trip with me in the car. Life is tough no one will ever really apply how difficult it is bring a young man in to this world. Looking to do direct payments for his care and we will hire the right people with the right attitude to support him in his house and out and about in the community. Fingers crossed he has a younger brother who will check in on his support when we move upwards and onwards, very distressing and concerning future for all families affected which with the right support really needn’t be we all need to be able to have a quality of life especially in our retirement. Stay safe and strong. 🙏

[Ilovecows in reply to 49Twister]

it’s awful that they are stressing you out like this 42twister it’s disgusting if I could help you I would if I could be a support worker I would be a very good one and help your son very good I would I think your so clever and I really admire you ❤️ I’m getting bullied by the police at the moment 😞

[49Twister in reply to Ilovecows]

Thanks for your kind reply and offer of help. Really kind of you, just wish I could help you in your difficult situation. Hoping you have someone who listens to you. Take care and keep your chin up. 😊

[HolisticMum in reply to 49Twister]

You are right, these things aren't worth the paper they are written on. It is disgusting people do not read them properly, if at all. Then it's like chinese whispers it all gets taken out of context and doesn't even relate to the person who it's supposed to be about. There seems to be no quality service and no one to check these people who write down this misinformation nowadays. It's a very bad situation for our young people, especially when they can't talk for themselves. My experience with an EHPlan was my son's first day at college after he left his special school after 3 years. The school had done a marvelous job, made sure all paperwork was clear etc. First day at college they try to give him cornflakes and milk, bearing in mind he had his breakfast before leaving the house. He has wheat and dairy allergies!! It was a good thing, I was not going to trust strangers with him and sent in his paid helper. She stopped them giving him that food. Otherwise he would have been ill when he came home. It's frightening and worrying.I hope you get a better deal.

[Camscot in reply to HolisticMum]

My son is 28 years old, the new care provider, who has only been in situ 6 weeks wrote the care plan? How on earth can they be trusted to do this when they only know him for such a short period of time, the parents have so much more knowledge of their child than anyone else? The care plan they sent over only covered the day time, nothing about night time and his evening routine. Absolutely hopeless, they have no clue whatsoever and the money they receive, well that’s another completely different matter altogether!

[49Twister in reply to HolisticMum]

Yes it’s pretty obvious these shortcomings are widespread and it feels like we can’t change things. Good to know we can vent our frustrations a bit on this site😊Take care.

[Camscot in reply to 49Twister]

👍😀

[Maisey01]

You can view his care plan anytime! As long as you don’t leave the premises with it, hope this helps x

[Camscot in reply to Maisey01]

Thank you Maisey01, that is exactly what I thought.

[Maisey01]

You’re welcome, makes you wonder if they’ve not been filling it in, as was the case with my brother.. hope all goes well x

[Ilovecows]

guys i have a disability and lots of people make things up about me they told me they do it to everyone I had so much experience of it bad care it needs to change if I could help you and help look after your family that needs help I would ❤️