Hi, I just want some advice or thoughts - I first made a post December 2019 my son who was is 20 yrs old and Autistic with learning difficulties at the time had been going to 2 Day Centres and stopped going as it caused so much distress and he was become very agitated and started pushing staff and we were being called to come and collect him. The best way to describe how he became is depressed not wanting to go out or shower basically losing all interest in everything he liked doing.
Fast forward to where we are now my son seems a lot calmer and has starting to want to go out coming with me to do the weekly shop or go to Greggs, McDonalds evening going for a walk (weather permitting), Pleased to say we managed all this without the need of medication. I realised it wasn't as simple as going to the doctor asking for some calming medication for my son. Talking with my sons social worker we both thought it would be a good move to introduce 1-2-1 support who work with Autistic Adults as they would be better equipped in supporting my son. We had one support worker who came for a few weeks before lockdown first happened in March. The support re-started with the same support worker end of July/August but my son didn't want her to come and after about 5 visits indicated for her to leave. We then introduced a male support worker and things seemed to be going ok as we went on some walks as he joined us at the top of our street rather than coming to the house- as this could have been a reason my son rejected the other support worker as we have never had support coming to the house. As he has always gone to the place ie school day centres.
So on Tuesday 22nd Sept we met the support worker at the top of the street and this was early evening 5;30pm and my son after about 20 minutes started waving and saying goodbye to the support worker so he went. Now I am thinking what do we do now. As my son is rejecting outside help, Could it be he might not be ready for the 1-2-1 support yet as he is still coming out of the dark place he found himself in early this year? or is it that he prefers to have just his dad and me being there. I am currently working full time at the moment as I recently got promotion so am having to train full time but will go back to 3 days at the end of November 2020. My husband works but he has managed to change his work pattern so he is around in the day while I am at work. So my son is not left alone for very long.
Sorry for the long message but I just wanted to see if anyone else has experienced anything similar or has any suggestion that I have not thought of, of how best to build trust with the 1-2-1 support with my son. We have never had 1-2-1 support before so this is a new concept for all of us.
My sons seems happier than he was 6 months ago I am pleased to say compared to how he became over Christmas 2019.
I would very much appreciate any advice or thoughts