Would anyone be interested in having their views on partnership working included in a chapter and hopefully book on working in partnership?

[Miajoss]

Hi. I hope it is ok for me to join this site. I am a lecturer in Early Childhood Studies at t and am trying to gather information for a chapter on "Working in Partnership with Parents," and hopefully, later, a book called "True Partnerships." I have a niece who has SEND and am co-founder of PACSO (the Parent and Carers Support Organisation) in West Sussex.

We are shaping our chapter and book around the fact that it is the experiences of parents and their children with SEND that should inform professional practice and shape services rather than the other way round. We are looking for written examples of your lived experiences ( positive ! and negative). Please let me know if you would be interested in being part of this project and I will message you independently.

Thank you

[Kimticus]

Hi. I would be interested. My son is 18 and has autism.

[Miajoss in reply to Kimticus]

That's great. Thank you so much. Would you feel comfortable emailing me so that I could contact you privately. My email address is:

[e-mail]

Warmest wishes

Becky

[Kimticus in reply to Miajoss]

Yes that’s fine.

[Notgivingin]

Hi, my child (now 18) has numerous conditions, including ASD and SEND, and has had a shockingly disgraceful experience of the education system, so much so they suffer from anxiety, depression, self harming, suicidal thoughts and trauma as a direct result. The local authorities involved were terrible, CAMHs not much better until a few years ago when we got a truly amazing specialist (probably because they get it as their own child has similar conditions). I’d be happy to be involved if your book helps people understand the system is no good for individuals like my child. It’s been far from a partnership up until we got the new specialist, and yet it is us as parents who know our children the most.